Lichen sclerosis FLARE UP
Posted , 2 users are following.
Hi, I was recently battling a long flare up and was diagnosed when pregnant with my second baby. I feel like im so stressed and have been checking it on a daily basis down there. I wake up and constantly think about it and its taking over my life. I have had flare ups back to back and its so painful.
Has anyone had flare ups during their period? is there anything you found helped? How were your flare ups? What did your flare ups look like?
Mine tend to be blow my clitoris just right above the urethra in the vestibule area. it would look patchy (pink to red). How do you determine when to use treatment (the steriod) do you go base on the feeling or what it looks like? please help share your flare up symptoms and what it looks like because im really struggling to understand and how to control this disease.
Thank you everyone for taking the time to read this.
0 likes, 4 replies
Alex1968 mel34062
Edited
For me a flare up is when I start burning.
I bath in Epson salt twice a day and use clob twice a day during a flare up.
I have white patches all over my genitals.
I rarely don’t have a flare up. But the instructions from my doctor are: Use three times a week to maintain and twice a day on a flare up.
I hope this helps.
mel34062 Alex1968
Posted
Thank you Alex! that helps! May I ask you a question. When you have a burning flare up, do you notice any signs on the skin like redness, swollen or anything?
Alex1968 mel34062
Posted
Yes sadly. I have to ask my husband to look at my genitalia’s every night.
We score it on a 1-10.
He is scared to touch me and to be honest I don’t want to be touched anymore.
It is a s****y illness.
Super red and raw and I have very little relief.
Sorry for the bad news.
mel34062 Alex1968
Posted
I feel the same way and I am in my early 30s. i struggle emotionally and physically with LS.
Alex, I too ask my husband to look down there and i think its been daily sometimes 3 times a day. I am in fear to know when it is a flare up and treating it with the steroid.
May you share how you score it on a 1-10? is that for pain or visually how it looks. during your flare up is it raw and super red? or is this daily when your not in flare up. im feeling raw and dryness in the vestibule area of the vulva (under clitoris and above urethra when you spread the labias. Have you experience it there? or is your LS flare up only on the exterior of the vulva like the labia.
I appreicate you replying. i feel so alone during these times.