Posted , 9 users are following.
Recently been diagnosed with LS and have clitoral hood almost completely fused
Could this continue and completely cover my clitoris and stop me being able to wee? Am so scared any advice would be appreciated
1 like, 26 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
ann67814 Mariesm
Posted
Hi there,
I have a lot of fusing and the hood extends beyond th urethra, it makes
Seeing messy, as it becomes multi directional! No blockage though.
So don't worry and I believe that you can use a emulator to stretch the
hood if necessary.
Ann
ann67814
Posted
hanny32508 Mariesm
Posted
cheryl33619 hanny32508
Posted
Guest Mariesm
Posted
Hi, had a biopsy today the gyno suspects it is lichen sclerosis, I asked her about borox and carbonate soda putting it in the bath, and she looked horrified, she said long term it would cause alot more problems. No it won't stop you weeing, have you had a biopsy to diagnose your LS.
hanny32508 Guest
Posted
Your doctor is ill informed - that is - the pharmaceutical industry can't make any money from baking soda and/or borax. It can not be patented.
?Some doctors acknowledge that there's 'healing' in the above mentioned. Years ago both baking soda and borax were used in hospitals.
Guest hanny32508
Posted
Hi, it was a consultant at the hospital I spoke to about borax, I understand what you're saying it was used in hospitals years ago, what was the reason they stopped using it in hospitals. I think people should read about borax before using it, then its up to them to decide. The gynecologist was very well informed about LS.
Neldog Guest
Posted
Amazing the difference between medics.... My dermatologist thought Borax was a brilliant idea and said its a shame she can't prescribe it here, because it is widely used in her country. ( lithuania).
x
Guest Neldog
Posted
Hi, I have spoken to several professional people about this, and not one of them anything good about borax, its not that expensive to buy , its a detergent, have you typed on the net why isn't it perscribed in this country, and should you put it on your genital areas, it will tell you why. Long term it actually thins your skin at a faster pace.
hanny32508 Guest
Posted
I will repeat my story: I was totally fused up, while only using clobetasol. Sure, it stopped the itching, but didn't do anything against more fusing and white patches. I ended up in the hospital for a dilation procedure. No longer able to wee, the small pin hole left was stretched (that's not the urethra) so I could pass urine again. Because I was afraid of all becoming infected, I started to rinse with warm water in which I dissolved some baking soda (old remedy) and discovered that gradually the fusing let go and the white patches disappeared.
?My gyno says: Keep doing what you're doing. All looks very good.
hanny32508
Posted
hanny32508 Guest
Posted
I can not argue with the medical professionals. Just lucky I have doctors who work with me at this point.
Neldog Guest
Posted
No, I haven't looked on the net to find out why its not prescribed. Would you care to enlighten me?
I tried the steroid ointment for quite a while and was no better, then i tried Borax and i have had no splits or tears since last Autumn, when i started it.
xx
kim59574 hanny32508
Posted
mary09950 Mariesm
Posted
Did your doctor prescribe medication yet? LS can be controlled. Keep reading up and don't be distressed. You've got company and you'll be okay if you try to find what works for you. My belief is that the steroid treatment is the best first step and constant moisturizer.