Lichen sclerosis worries
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I was diagnosed almost 3 years ago with LS. It was struggle at first as first gyn I went to was treating me for fungal rash. I only had a lot of redness and no itching so he didn't think it was LS. Took three months to finally have biopsy and get results, by then I was looking for new gyn. A friend suggested I go to a vulvar specialist and thankfully I did. I started seeing her Dec. 2015 and with her help and using clobetasol ointment I have thankfully been able to keep it under control. I was quite happy with that until I read an article that said 4 years is longest it has ever been controlled. Is there anyone out there who has had been able to keep it under control longer then that? I am so happy to have found this support group as no one I know has this and most people have never heard it (of course I had never heard of it either until I was diagnosed.)! I am in USA and do not think we have any support groups for this, at least none I could find. Sorry this is so long but my first time here and guess I had lot to say😀
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cheryl33619 Guest
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Guest cheryl33619
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odiee Guest
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Guest odiee
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K.G Guest
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Hey!
I was diagnosed with LS when I was 20 and was in remission for NINE YEARS! A few months ago I started feeling symptoms and went immeadiatly to an LS specialist in DC, where I live. I've been alternating with clob and a hormonal compound a pharmacist made that has both estrogen and testosterone. I'm still not totally symptom free after 4 weeks of treatment, but I'm getting there. Still have a few bad days here and there. I'm keeping a journal of my symptoms everyday as well as what I eat for the next 4 weeks before my follow up appointment to see if there are any patterns. But yes- remission is possible for long periods of time. 😊
Guest K.G
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