Lichen Sclerosus

oses with mucosal lichen planus for about 9 years now. I too was put on steroids for about a year to try and control the symptoms which it did. I now use Dermovate on a regular basis to try and control the symptoms which flare up regularly. I have had 3 surgeries on my vagina as I developed adhesions caused by scar tissue. Also my labia minora have disappeared. I see my consultant yearly for smears and currently 3 monthly due to severe changes.  This really is a painful condition and not many people seem to have heard of it. It has affected my sex life but again I have a longstanding patient husband who is very understanding.  Also you should be aware that it can affect your mouth as well which it did in my case with with numerous mouth ulcers which need to be monitored as they too can turn malignant. Luckily my mouth is now in remission! I watched that video the last person indicated and found it very informative.  On e good idea was to have a bath to soften the scar tissue prior to application so that the steroid ointment can be better absorbed and I think I might try that. There are few dermatologists that suggest anything other than sterois from what I can see.  Would love to hear if anyone has any further ideas or comments. 😀

You will need to decide if you want to take the risk of using a natural product yet to be agreed by FDSA as it is indeed a risk.

Long story short - I used Perrins Blend for 12 consecutive days and while I appreciate that not everyone is in the position to do very little other than relax and allow constant contact with the blend on the affected area,(it can get a little messy) the results for me have been nothing short of miraculous.

Prayers and perrins blend have led me to be symptom free within 14 days and I aim to continue with treatment one day per week for 'maintenance'

My inner and outer labia on one side were fused and underneath were sores, blisters, cuts etc which were obviously very worrying. The skin, after 14 days, is like brand new skin and approx 95% 'normal' skin, matching the opposite side which was always healthy.

Take a look at the site. There is a UK site and US.

Dont take my word for it - give the website a try.

Note of caution - it does sting a bit but is worth every second and great knowing it is a 100% natural product.

i know this is an old post im just hoping you still check in.im just wondering how you are doin now as im from ireland as well.

I have been reading your blog and found it quite helpful.  I have recently been diagnosed with LS.  I'm 59, thinking back, I had symptoms when I was about 9, and my mother said I didn't clean myself enough, but I did.  I'm sure they didn't know what LS was back then.  Although I was born in the US, all four of my grandparents were born and raised in Ireland, and from some research I've found that there seems to be an Irish  connection.  My parents are deceased, so I cannot find out anything, although if they were still alive, I wouldn't be able to discuss it with them anyway.

I had surface blood vessels and was very itchy (vaginally and anally), especially at night.  After having my GYN of 20 years retire, I could not find one I was comfortable with, they seemed to use me as a guinea pig.  I moved 700 miles away, and recently found a young female doctor, who biopsied and diagnosed me on my first and second visits.

She put me on Clobetasol cream with no further instructions regarding diet, etc.  I have to return in 6 months.  I am interested in reading your findings, because its a rare skin condition in the US.  I worked as a Registered Nurse, but not specialized in OB/Gyn, and never heard of it.  

I am very interested in the treatments you receive and the dietary changes made to help prevent flare ups.  I know I'm much older than you, but I do hope you will include me in your discussion and treatments.  Thank you.