Lichen Sclerosus
Posted , 18 users are following.
I'm so relieved to find an online voice to be able to express my utter despair and sadness around this humiliating condition. I have a wonderfully caring and loyal husband who would chastise me for my feelings of indignity now that I am forced onto sharing details relating to my deteriorating and painful "Lady Garden". I absolutely hate the fact that I have to say no to sex, no to an evening walk, no to a bike ride up to the pub. That all the sensual mystery and allure is gone, due to the clinical facts and diagnosis of this most unladylike and debilitating condition. I feel stripped of my femininity which hurts me more than the hot-coal between the legs burning pain which strikes so hard it reduces me to floods of tears in Tescos car park.
1 like, 46 replies
Guppy007 SallyAnn63
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SallyAnn63 Guppy007
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Yes, diagnosed a month ago and feeling that the steroids have made things worse, has anyone else experienced this?
claire12259 SallyAnn63
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I too cannot use steriods or anything topical as it just aggrevates the condition. My LS is now in remission through me changing my diet only. I went sugar/gluten/dairy free. I think the worse culprit is sugar (for me). You will find many ladies on here have had fantastic results just by changing their diet. Its easyish (!!!) and well worth the results. I would say I found really good results in 2-3 weeks. I think its an easy change to make before you try maybe more expensive creams/treatments etc. If you find it doesnt work, you will definitely find an answer from someone on here. Are you in the UK? There are a few medical procedures you can try, albeit quite expensive ones. Good luck and dont give up. Im sure you will find your cure, it may just take a little while to find out what works for you XXX
Jackiem26 SallyAnn63
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SallyAnn63 Jackiem26
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Jackiem26 SallyAnn63
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Okpeeps Jackiem26
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No wonder you ran out of there. I sometimes think they see so many patients that they themselves forget compassion and normal human decency. I do hope you don't ever experience anything like that again x
Guppy007 Jackiem26
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Okpeeps SallyAnn63
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I hope you find relief and can get back to some sort of normality ..... Hang in there xx
SallyAnn63 Okpeeps
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Thank you for your kind words and I do usually feel optimistic and positive, I've just had such a pain filled day that I needed to bemoan my fate. I'll not make a habit of it!
Okpeeps SallyAnn63
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Onwards and upwards xx
Lodge SallyAnn63
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I can completely empathise with you. I went to my GP over a period of a couple of years due to soreness and sex becoming very painful. He said he couldn't see anything wrong and basically just put it down to vaginal dryness as a result of being post-menopause. By the time I was told what it was, just about everything had disappeared
Please don't despair, the cream did really help after a couple of months, but I haven't had sex for well over a year now - in fact probably only about ten times in total over the past six years and that makes me very sad. It is awful when you reach the point that you simply cannot face the pain of even trying and then the disappointment for both of you.
I would like to see a gynae again (its been nearly five years now) just to try and find out if there is anything else that would help.
SallyAnn63 Lodge
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joe41286 SallyAnn63
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cherylr SallyAnn63
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I don't know if LS has anything to do with early menopause, I started at 40 and that was also a terrible loss to my "womanhood" psychologically and very badly handled also by a male GP.
9 months ago I started on a big health kick. I've lost weight, no sugar, wheat, only lactose free milk occasionally.
I ride my pushbike a few times a week, go to the gym a couple times a week and walk as much as possible. Even though it can cause irritation I don't let it stop my exercise.
Right now I only have very minor irritation. My main concern is a constant swollen clitoris which I believe has been caused by the daily use of Advantan. I see my gynae soon and will discuss that. In the meantime I am only using the Advantan when I feel it is necessary.
I too have fused bits and look nothing like I once did. I have tried all sorts of natural creams, oils etc. At the moment I use a natural bush remedy used by my Australian Aboriginal mothers for generations. It is Gumby Gumby leaf made into a balm. I also take a capsule of it each day, from Golden Gumby Gumby.
I was devestated when first diagnosed, much better now and I discuss it with anyone who has autoimmune and stress related disorders.
Good luck.
Guppy007 cherylr
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cherylr Guppy007
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At the moment I am soaking in our beautiful Artesian Bore mineral bath, the mineral water appears to be helping my LS immensely and my other scaly skin problems have cleared up to. I'm really feeling great at the moment. 😊💜
Guppy007 cherylr
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