Posted , 3 users are following.
I was just diagnosed with Lichen Sclerosus and am very overwhelmed. I have so many questions, but I'll start with asking what everyone uses to wash. I read that you should only use water, but I'm not sure I'll feel clean without using some sort of soap. Thanks
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dmpg123 melissa54307
Posted
I was just diagnosed also. I am overwhelmed. I have a lot of scarring but I don't have the itching. My OBGYN and dermatologist think I dont because of my Otezla for my psorasis. I don't know anyone with this condition and feel so isolated.
Irishlady melissa54307
Edited
I just got diagnosed last year and got it under control, going through a flare up now at the moment and its hard to get under control but it will eventually.
It is very overwhelming when you find out first especially that dreaded word 'fusion'. I'm not in the least worried about vulva cancer, its the destruction of the architecture of my vjay and thinking of sex while I have a flare up that causes me the most upset.
I don't shower with anything only water and I wash my hair over a sink as the shampoo and conditioner rinsing off can flow down the the vjay and causes me a reaction. There are a few suggestions I think like cerave etc but I'd stay away from anything supermarket type and stick to those bought in a pharmacy.