Lichen Sclerosus and growth

Hi Sandra, I am so sorry you are going through hell for so long.  I use Clobestol when I have a flareup and I now mix it with Emuaid, which has been quite effective.  For how long I don't know.  Maybe you need to try another cream or are you just afraid of the cortisone?  When I have a lesion I put Dr. Gold's medicated cornstarch powder on it rather than putting the cream.  There are others on this site which have their own formulas that work for them.  Let us know how you are doing.  Take it easy. We are here for you.

 

Same happened to me. I was put on Dermovate and 4 weeks in came out in a major rash between legs. As I was put on Vagifem at the same time I didn't know for sure what was causing it. I was told heat rash but it definetly wasnt. I stopped both and tried the Dermovate again. Within an hour the rash was killing me so I washed it off. Several weeks later and its still not gone but fading. Im supposed to start the Vagifem again as the vaginal dryness is now affecting my bladder as well. Like you Im terrified to put anything down there now as it all burns

 

Hi Sandra,you have had a rotten time. I am 73 and was diagnosed about 5 years ago. I used Clobetasol initially and occasionally now for flare ups, but I use eumovate most days this is a much weaker steroid. These keep things generally under control for. me. I hope that all goes well with your biopsy and growth removal.

hi Sandra, Dermovate is the only thing that helps with mine,because its a hidden desease ,nobody talks about it,i don`t know anyone else with it.i find that apart from stress,this hot weather causes flare ups,so i`m using the cream every night atm instaed of twice a week,i hope you get sorted soon x

 

The gynecologist I go to said I had the worst case of ls he'd seen but prescribed clobetasol. I also itched so bad I bled. I pray you get better. It's a tormenting itch.

Hi Sandra, have you looked at your diet?  Try cutting out dairy and sugar.  It is not easy, but once you notice the difference it will spur you on.  LS can make you feel quite wretched if you dont get on top of it quickly.

Oh my GOSH, honey! Sandra dear... no no no.

You DON"T have to take something that you are terrified of!!!!!! LISTEN to your own body; KNOW that you know your own body better than anyone. IF that steroid caused 5 weeks of hell there is no reason on God's good earth to do it again!

There are plenty of us out here who have NEVER taken steroids and have found relief from itching from using other methods.  Please read up on the nutritional aspects of autoimmune diseases (worldwide deficiencies).   Take vitamin D3 and K2 and magnesium, Vit A,Selenium, Folate, Vita B complex etc - Find the article on here. I've got 3 of them in my discussions area (click on my name). 

Sandra I am 72 and in the United States. I don't know anyone with it either except for all of the wonderful women on this list. Anyway, at age 69 you are also of a generation that we were still raised to trust everything that the doctor said - that any scientist-trained person said ... and to not think for ourselves.

I'm standing here singing into your window - YOU HAVE PERMISSION TO THINK FOR YOURSELF! Doctors are simply other people who have been taught the best science had to offer at any one time... But then... science changes; It is our own responsibility to keep up at least a little bit.  Those of us who have never taken steroids as a palliative (its not a cure), do so precisely because we read and are willing to accept anecdotal evidence. There are many women before you who have written that they went through hell using it etc.   

YOU yourself are anecdotal evidence for any woman coming after you that that is not a solution for many people. Some women here tell us that steroids are the only thing that helped.

yeah, but did those who say that ever work to clear up their NUTRITIONAL DEFICIENCIES that have been proven to be associated with LS and other autoimmune diseases?  SEE? What I've found from extensive reading the last 6 months is that many, if not MOST, doctors don't know/haven't been taught/haven't had time to read (it took me three months solid) the amazing power of nutrition and how vitamins and minerals especially trace minerals can be so friggin subtly powerful in making the difference between health and not so healthy.  Good luck and blessings,  trust your own knowning...

Hi Sandra, steroid cream and topical HRT 2x pw, emollient cream to wash and emollient spray after going to the toilet works for me.  Good luck.