Lichen sclerosus and pregnancy

Thankyou for your post- i havent been diagnosed with ls but have had an itchy bottom for over 10years, i have noted that my itch has only ever left during all 4 pregnancies- thought i was going crazy but good to know there other people with similar problems!

Hello i know this thread is a little old but there is not much information at all on the internet with woman suffering from LS and i wanted to share my story in the hope it will help others.

I was diagnosed not long after my Daughter was born at 22 years old, my doctor at first was so shocked someone at my age had LS i was sent off to have a consultaion to confirm i had it. I knew i had to be on steriod cream for the rest of my life, but to be honest anything that would help the terrible itching down bellow and the thinning of the skin i was relieved.

I am now 33 and fell pregnant with my second daughter 3 years ago, my imeddiate worry was a vaginal birth as i knew i had scarring from LS. I saw my first consultant who really did not seem to know what LS was and said 'Its rare but i see no problems giving birth naturally a c-section is major surgury and i feel it is not necessary' She did not even want to give me a check down bellow to see the extent of my condition. I then made another appointment with one of the top consultants so i was told. He was lovely very jokey and did put my mind at ease he said 'Whats the worst that can happen a few sticthes, you can have a c-section but thats major surgery and alot worse' Again i requested for him to at least look but he seemed to want us out and kept insisting that my condion was not a major risk, i did leave feeling better that in fact i could deliver naturally and maybe LS was not all that bad and with the midwifes putting hot towels i would not bleed.

Cut a long story short i was 12 days over due when my waters broke labor was ok the midwifes were saints and were all aware i had LS, i did have to explain what it was to a few of them. I gave birth to a lovely Daughter after 9 hours of labor two pushes and she was in my arms. I was uttery amazed when i asked my midwife if i had torn and she replied maybe just a few stiches needed i was crying with happiness. As i had my Daughter in my arms i could see the Midwife tugging trying to get the placenta out looking slightly concerned. It did come out eventually but i hemorrhaged all i can remember is the room filling up emergency bells, an iv being put in my arm my partner lookiing horrified. I was rushed into sugery terrified i had lost so much blood, basically LS had damaged the tissue so severly i was ripped inside even near the bladder i had to have reonstructive surgery it was terrible and recovery was awful i had to have a catheter for two weeks, and it was just terrible rubbing against my stitches, i could not look after my daughter (thank goodness for my amazing partner) 

I am sorry to write such a negative story but i just want to raise awarness, if you do suffer from LS please get the consultants to examine you properly. Its a condition i feel is not researched enough for pregnant woman as its so rare. If my partner and i decide to have another it will be a c-section. 

I do hope this helps woman