Lichen Sclerosus cured - but it took work.

Hi sk79

I did not have any tests done for metals, and no scientific tests for food intolerance, but I got my two alt guys to test me on my foods using their own techniques. They came up with all the same answers: no dairy, no mushrooms, no fruit with pits (allergies), way more animal fat (keep the skins on when I eat chicken, etc), more nutritent rich foods like liver, dark leafy greens, organic eggs, wild rice, vegetables.

I think it's different for everyone though. The dietary change worked right away for me - big difference after I got rid of the dairy. I've stuck to roughly the same diet ever since and it works for me.

If there is any chance of gluten senstivity, I would try removing this completely and seeing how you feel after a couple weeks. If you still find dietary changes make no difference, at that point I would guess that there is an underlying problem that is not being helped by food eg. a stubborn low-grade infection, low thyroid, stress, lack of sleep, etc. Do any of these sound plausible?

Sorry to hear about your crappy doctor - I've met a few of those haha. Hope you improve soon

I discovered something that made my long time LS about 90% better.

I've had this awful problem since I was 31, (I am 64 now).  It has gotten so bad that everything was white, burning, swelling and itchy. It hurt to even sit down.  For about the last 25 years I used Clobetasol with only minimal results.  It got so bad I was using it every day and it still was getting worse.

My GYN said it looked so bad that she did a biospy on it.  Here is the blessing in disguise:  She gave me a solution of half saline and half peroxide to spray on the area until it healed up from the biospy, (which turned out negative).  Being a diabetic, healing doesn't come easily to me.  While I was using that solution at least 3 times a day, I noticed that the usual swelling, burning and itching seemed to subside.  In fact, it has been four months...no swelling, burning or itching!  I have not had to use the Clobatasol even once!  This is amazing to me because I was told that nothing would inprove it.  So, now I am down to using the spray 1 to 2 times a day with continued improvement.  What a relief this has been.  I hope someone else can try this and get some relief.

One more thing.  Spraying this solution is not an overnight cure.  I had to use it for weeks to heal up the wound from the biopsie, (little did I know it was also healing the LS). However, if it works as well for you as it did for me, it is well worth the effort.  Not having all the symptoms that goes along with LS and not having to use Clobetasol, antibiotic creams and other stuff is such a God send.  I literally just spray this stuff on and forget it....amazing! I just wanted to put this out there incase it could help someone else.

Here is the formula of Hydrogen peroixide and saline solution:

4 oz bottle of hydrogen peroxide mixed with:

500 ml of saline.

Then I put it in a spray bottle and use after each bathroom use...up to 4 times a day, (I'm now using it 1-2 times daily and it is keeping the LS about 85% better.  Some days I even forget I have LS...isn't that amaziing???  I hope this works for someone else.

 

  

 

 

Thank you Ozzie0 for the formula.  Can I assume that the 4 oz bottle of hydrogen peroxide is 3%.    I have 3 grades, 1%, 3% and 35%.  Maybe I should start with the 1%. Dana

Hi Dana,

I use full strength hydrogen peroxide, but delute it with the saline.  It works out to be about half peroxide and half saline.  The big thing is, you don't want the solution to burn, so you may want to start out with a lesser amount of peroxide.  I put mine in one of those tiny travel spray bottles and I cut the 'straw' very short, (this makes refilling the bottle so often unnessasary). If the solution stings you, just keep putting less peroxide in it until it is comfortable.  I would give it at least three weeks to work, then, if you have results like I did, it will just keep getting better and better. I use it only once a day now, it's been over a year and I am still free of just about all of the symptoms. :-)

Best of luck to you, and let me know how you are doing.

Hi!

Please answer this doubt I have, I know is a weird question but I want to be sure. Do you spray it on your vg and then just leave it there, or you instantly dry it out with toilet paper :S

Thanks!

Not a weird quetion...just a technical one.  I sprayed it on... making sure I got it on the areas that were bothering me most while sitting on the toilet.  Then I sat there a few minutes and let it air dry.  If I was in a hurry, I sprayed and then just dabbed the area lightly with toilet paper.  Today, since I am so much better and there aren't any areas that are bad, I just generally spray my vg and let it air dry once a dayright after my shower.  I may not even have to do that, but I don't want to take any chances and have this awful thing come back. My doctor says I can use this indefinitely. I don't know why this has worked for me, but after suffering with this awful diease for 35 years, I feel incredibly lucky and blessed that it has.

Good luck to you and please let me know how if it has worked for you too.

Thank you! I think it definetely works because peroxide helps eliminating toxins and I think that is what triggers the disease , I have been itchy a couple of times and have used oils and it has not worked, then I have sprayed the solution and the itched has stopped. My skin is still red when I look at it and a bit white on certain areas , but I really have no symptoms , before it was hard even to sit down, now at least is just hard to look at haha, and I stopped the steroids a month ago, too many side effects and too toxic. Hard to tell if it is a 100% the spray because I also started and organic diet, eliminated sugar completely, gluten and dried fruits and dairy, and also changed to organic products in toothpaste shampoo and other stuff, following a protocol of someone that cure herself and wrote a book about it. But again I think it really works , if I have an evident improvement in general I will make a post.

Take care

This is great news!  I know I had to wait a while until things started looking better, even though they were already feeling better.  I think continued use and patience are the keys.  I do hope you continue to heal completely and get back to living life.  Let me know how you are doing a few weeks from now.  Hopefully, others will give this a try too.

Hugs,

Nancy

Hi you say you use full strength hydrogen peroxide. Do you mean 100% peroxide? I'm on the USA in the Dallas TX suburbs. The stores only sell 3% peroxide. And where do you get 500 ml of saline? Currently been sort of diagnosed with LS by a traditionAL medical dermatologist with a crappy bedside manner. She has me on 2 weeks of Clobetasol and I'm to use it no matter how painful it is. I'm to PUSH THROUGH THE PAIN! That's not going to last real well in my book cuz I'm all organic and have always been all alternative homeopathic and herbs since I've been diagnosed with chronic fatigue years ago. 20 Yrs ago was treated in Houston TX for Systemic Candida. And now is flaring up again. So I've just started my Candida diet again now 20 days into it. But the Clobetasol sometimes work and sometimes doesnt. My obgyn will be doing a biopsy on Dec 12, 2015 so we can see if it really is LS or something else as my mother had cancer of the vulva. And yes I'm on a compounded formula of thyroid medication but can't take the full dose cuz it makes me sick. So I only take what I can tolerate. My tsh has just started going up to 4.36. But since my candida flare up I started thinking that maybe this LS that they think I have might be fungal in nature as my 2 big toe nails have started showing signs of nail fingus. And the sudden constipation and bouts if cramping and sometimes diarrhea have all let me back to my Candida history. But it takes awhile to clean up 20 years of not following very well the diet before it clears up.

So my question about the peroxide and saline will be my plan to try after I'm off the Clobetasol by next Tuesday and after my biopsy to confirm what it really is. So if this can be done with 3% peroxide how does one figure how much 500 ml saline to use. Let alone where does one purchase straight saline in that size?

Thanks for all your help.

Hi, please help me. I've just discovered I have LS. I am 31 years old and very scared. Can you please tell me how and where I can get this saline and what to do. I am so frightened. Thank you.

This post helped me immensely. I was new to LS -- internet search borne of my misery led me to figure it out. Had never heard of it. I tried the peroxide/saline you suggested (had the ingredients in the house!) and it was a huge help. Gave up wheat, as I have always felt better when I did, but was not always disciplined about it. Now, with LS flaring up, I had a more compelling reason to stick to it. My first ever flare up was 5 months ago, had no earthly idea what was going on! The peroxide solution helps, but got lazy and stopped when I felt better. Then went on a wheat & sugar binge when my kids came home from college to visit. Voila, a few weeks later, which is now, another flare up! Back to the wheat free, sugar free eating and peroxide solution. Also applying coconut oil which is a great relief. Still reading posts here and learning other possibilities. Thanks again for sharing that.

Wow...can't wait to try this. Thank you!

I purchased NeilMex Sinus Rinse at Costco for the saline.

I found saline solution at my local Walgreens pharmacy and I already had peroxide stocked in my medicine cabinet. I mixed mine half and half (4oz saline to 4oz peroxide) and put it in an 8oz spray bottle. I must say I was pleasantly surprised! This solution is a definite winner. I have a spray bottle sitting in my bathroom within easy reach. It is something that I will certainly be sure to keep on hand. Much, much better than using steroids unless of course you absolutely have to. This is not a cure all but man what a wonderful cleansing relief! Hope this helps someone on this thread!  

Thank you Jen! Maybe I can stop at Walgreens on my way to picking up my turkey tomorrow. I appreciate this.

It's in a light blue bottle kari61500...

It's Walgreens brand. Make sure you don't get the contact saline solution. I found this over with the bandages amd wound care. It's says "Saline Wound Wash" 0.9 Sodium Chloride Solution/First Aid Cleanser. It's a pressurized 7.4oz spray can. It shoots a pretty strong stream. I wasn't sure if it would work but it worked just fine. I made my recipe using a basic measuring cup. I already had a plastic spray bottle with an adjustment of either spray or stream. 

The first time I made it I used 4oz of saline to 3oz of peroxide I was worried about it burning but it didn't so this last batch I decided to try it half and half. Half and half is working fine for me however if by chance it burns you can always make it a little weaker (on the peroxide)

I am using it once a day but you could use it more often if need be. I love the fact that it cleanses and heals! Good luck sweetie! Please let me know if it helps you... And I pray it does! God bless you! 

Found it Jen and thank you. I'm going to try it after Thanksgiving. Can't risk being debilitated right now. Cooking.

Hello

Did this work for you? I'm in Dallas too.

Looking for a cure.

Thanks Kathryn

Sorry Kathryn. I haven't tried it yet. I'm fighting a cold now. I'll give it a try as soon as I can.

Hi Ladies! Just wanted to say THANK YOU!!!! for sharing your recipe for comfort & relief from LS! I've had it for over 13 years, but was just diagnosed with it on Monday of this week. Today is Friday, & I am almost pain free for the first time in 13 years! My doctor, of course, gave me a prescription for corticosteroids, which she stated I woud be using for the rest of my life to "control" the LS. I was not comfortable with this diagnosis, so as soon as I got home, I stqrted looking in the Internet for alternatives to this damaging medicine.  Was I ever glad that I read this thread!! I had the peroxide & spray bottle in my home, but not the saline spray, & it was too late to go to the drug store or Dollar stores in town, & I was too drained physically to drive to Wal-Mart (I also have fibromyalgia & am doing PT for a torn rotator cuff 3x a week) but I was up at the crack of dawn to get to the drugstore to get the saline spray Tuesday morning!! They only had one bottle in the wound care area, & I asked the pharmacist if they had more, got a negative reply, so stopped at the local Dollar store & was happy to see that they also carried it! Picked up another bottle & came home, made up my first bastch & sprayed away! That, & my husband's gabapentin every 4-5 hours have been a life changing event, because this flare-up was the WORST one I've had in the 13 years I've had this terrible disease!

So again, THANK YOU & GOD BLESS that I found this wonderful life changing site! I read every single post on here & can relate to ALL you you! How brave we are to fight this terrible debilitating disease! 

Hi there. Thank you SO much for posting this. I just started using this solution 2 days ago. I couldn't find Saline solution other than Contact Lens Saline Solution - but I think it is the same thing? Do you think that it is? Also, Am I supposed to spray it on the vagina opening too because it stings when I spray it. Thank you in advance.

 

I bought contact lens saline before I read this - it stings but why is it bad? Also, how do you mix the saline with the peroxide if they saline is in a pressurized can? Thanks <3

I used the peroxide full strength  after ghastly itching nightly and painful fissures for 2 or months straight. Now I have had this since my mid thirties so going on 25 years. I've used different steroid creams which calmed it down but lately nothing has worked.  I used the peroxide and did not itch at all during the night. The next morning the fissures had closed to about 90%. Amazing. No hurting anymore.