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Lichen Sclerosus flare up.

Posted , 6 users are following.

Butchart
Butchart

I was diagnosed with vulval lichen sclerosus over 5 years ago but I had problems for a few years prior to diagnosis.

Basically I had things under control. I'd accepted the changes in my vulval architecture and coped with occasional flare ups but last year I developed either thrush or bacterial infection between my butt cheeks.

It took a while to get everything under control, initially with trimovate over the entire area twice a day for 1 week ( prescribed by gp who doesn't know much about LS). The use of trimovate continued for a few weeks and seemed to treat the thrush/infection but it was only when I restarted using dermovate daily that things started to get much better.

All seemed well for a couple of months but the butt problem is back so I'm pretty miserable right now but was pleased to discover this website as I did my usual trawl of the websites.

It's good to hear from other women with LS as I the only people I speak to are my gp and consultant.

Any advice would be welcome. 😃

0 likes, 9 replies

9 Replies

  • pamela70431
    pamela70431 Butchart

    Posted

    i too have this problem. i was told to use the dermovate in that area too.

    it is a horrible condition this ls. my gynae bits have all changed too. no forchette

    left. my clitoris is virtually gone. it occurred to me in a black nurses humor that this

    is the body's version of FEM ! self mutilation of the genitals !

    • Butchart
      Butchart pamela70431

      Posted

      Thanks for responding, it's nice to know I'm not alone.

      I had been using dermovate 2/3 times a week but things flared up so i started using daily and things seemed to be improving but I think the dermovate has maybe caused thrush to develop so I'm back on the trimovate.!!

      😃

    • suzanne25846
      suzanne25846 pamela70431

      Posted

      I became aware and have felt exactly the same about FGM ... this is a huge topic that I am exploring at the moment.

    • beverly52803
      beverly52803 Butchart

      Posted

      I think all the stuff we apply causes a state of imbalance so it is not unusual that we might develop yeast infections. I have holes in my underwear that were created by what I thought was the steroid but now think may have been made by the hormone cream. That can't be conducive to PH balance, can it?

  • Vita23
    Vita23 Butchart

    Posted

    Hi, Butchart,

    I am going to share what I used most recently after a month of antibiotics for Lyme. I am doing much better LS-wise since the 6 weeks of non-steroidal Protopic. Actually, I improved dramatically, but because I needed to get on a long course of antibiotics for just discovered Lyme (which I think is behind LS, too), I experienced thrush one day down there. Coincidentally, a dermatologist had prescribed another member of my family Ketoconazole Cream, 2%. So, I mixed up a little bit of it with Aveeno 1% hydrocortisone cream, and applied all over. The thrush disappeared the next day. I still applied it one more day, 2xday, justin case. Ketoconazole did that to the fungus on the body of my family member, too. It is the only thing that cleared in 2 days persistent fungus on the body that nothing else helped with. Now, I don't know how safe it is to use on the vulva, but I took the risk. No problems ever since. No itch, no white.

    • beverly52803
      beverly52803 Vita23

      Posted

      The last dermatologist I went to prescribed Tacrolimus (Protopic) for LS and Ketoconazole shampoo for my scalp. I'm not sure the shampoo does much more than a dandruff shampoo does, but it really dries my hair out terribly.

      Years ago a GP prescribed it in cream form for a dry spot near my hairline which he said was far better than the steroid another dermatologist prescribed for the spot. I think we are all science experiments!

      Maybe using a regular yeast cream would be better for the vulva or anal area(?)

    • beverly52803
      beverly52803 elizabeth53274

      Posted

      Vulval LS. Seborrheic dermatitis (I was told) on my scalp and a spot on my forehead. I think a regular dandruff shampoo is just as effective and much easier on hair than the Ketoconazole shampoo.

      Many years ago I went to a progressive women's clinic and was prescribed Nystantin orally. I had had vag infections they thought was caused by yeast...though I tested negative for it. My scalp cleared up beautifully, but the vag issue was actually cured with flagyl.

      If I see the derm again who prescribed the Tacrolimus (for the LS) and the Ket shampoo I will ask about using Nystantin orally rather than the shampoo. Worth a try.

      I find a no carb/no sugar diet to starve yeast impossible to maintain.

  • Butchart
    Butchart

    Posted

    Thanks for your messages ladies.

    Don't think I'll try the Ketanazole cream at the moment as the Trimovate seems to be working and I'm a bit hesitant about applying Ketanazole to my delicate parts.

    Curious about protopics but have never been prescribed them. I'm going to ask my consutant what she advises when I see her in a couple of weeks.

    I agree we're sort of guinea pigs!

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