Lichen Sclerosus nearly cured
Posted , 33 users are following.
I had a biopsy and it was confirmed I had LS. I was put on steroid cream and told I would have to be on it for the rest of my life as there was no cure. Well I knew that wasn't going to be my way of dealing with it.
I did try the cream and it instantly irritated my skin and it went bright red and hurt. I stopped it within 2 days.
I went to a naturopath. She put me on 4000 mg of Vitamin D daily and a very expensive and potent type of Acidophilus. She put me on a STRICT diet which eliminated the foods I knew I was intolerant of. In my case milk and gluten. I was not permitted any milk in anything. No milk or butter added to the bread I ate for example. Absolutely no gluten or milk at all for a week.
The LS is retreating and very faint after just 8 days!
The naturopath said that although they don't know what causes the autoimmune reaction to start, they do know that food allergies and a vitamin D deficiency exacerbates the problem.
7 likes, 86 replies
kweega
Edited
I want to offer an update here to my posting 4 years ago. Doing what the naturopath recommended kept the LS at bay, but it didn't disappear completely. Then I read one opinion that it was caused by a virus and I wondered if I could combat it this way.
When I was in my 30s I got cancer of the cervix which was eventually cured by a naturopath putting me on a 6 week detox diet to rid me of the vaginal warts virus. I decided to tackle LS the same way.
For a month, I took every supplement I could find that naturopaths recommend to detox viruses. I then went on a 6 week raw fruit and veg diet only. Yup it's really hard to stick to, but the saving grace is that you should never be hungry. The moment you feel hunger you eat fruits, veggies or both. I made a lot of giant salads over the 6 weeks.
For me I believe one thing that helped is that this diet eliminated all gluten during the 6 weeks. I had a number of food sensitivities, but gluten seemed to be the worst. That stuff is in everything and although I'd been trying to cut it out, I hadn't fully done so until I went on the detox diet.
At the end of the 6 weeks I was pretty much symptom free although I still had white skin. I stuck to the strict gluten free diet and after another 4 weeks my skin has returned to smooth, moist and pink, the vaginal pain is gone and I believe I've healed. I'm hoping that staying off the gluten will stop the LS symptoms from returning. If it was indeed a virus that initiated LS, I'm hoping I've managed to rid myself of that too.
nikirobs kweega
Edited
This post gives me hope. I was diagnosed with LS 4 days ago and i am reeling and quite frankly scared. I have been prescribed a steroid cream but have started reading about life changes i can make to attempt to alleviate this. I was diagnosed with an underactive thyroid about a year ago. I believe its all connected.
Im 42 and I dont want my sex life with my husband to be over. The LS just snuck up on me in the last few days but the changes to my body are already very damaging. i feel very low.
I have been referred to a gynecologist and hope to have my appointment within the next few weeks. I have started reading up on what changes to implement in my life to hopefully get a hold on this 2 conditions. Any recommendations would be gratefully received. THANK YOU.
Moonie7997 nikirobs
Posted
I am also scared of what this can do to my marriage.
Moonie7997 kweega
Edited
Do you have metal fillings? I have two metal fillings and was also exposed to high levels of Mercury at the World Trade Center after the 9/11 attacks. Shortly after the attacks, I started getting itchy purple bumps on my wrists and lower legs. Then white lacy sores appeared on my tongue. It took a few visits to the doctor before I was diagnosed with lichen planus. I started eating better and cut out all meat and even fish which I loved so much and ate loads of, even sashimi and sushi weekly. Never knowing about Mercury in fish. Anyway, after I stopped eating fish, dairy and meat my lichen planus flare ups went away and did not come back. I actually forgot i had it. Then after 10 years of no meat diary or fish, I started to eat fish and eggs again. Not long after, I started to get anal fissures. I thought it was due to inactivity or dehydration. Then the itchiness an soreness started on my vulva. I bought over the counter yeast infection medications to treat it. One day I looked at my vagina and it was white. I googled the symptoms and found lichen sclerosus. Immediately I remembered my lichen planus from over a decade. I am wondering if this has to do with mercury levels and my eating fish may have raised them. I want to get my fillings removed but also read that it can be risky. I was wondering if anyone here has metal fillings. I got my metal fillings when i was 10 years old andnot long afterward I started having horrible allergic reactions to anything nickel plated.
adele39821 kweega
Edited
I agree with everything Kweega said, and had similar positive results with a strict AIP diet, and vitaminD.
The cream will only work so long; you must look at the whole picture, and you must absolutely consult a non-western medical professional.
In my case, it meant developing a spiritual life, working with a shaman, and removing my breast implants. I had them placed in 2010 and my symptoms (plus migraines, severe night sweats, digestive issues, constant yeast infections) began that year. I was diagnosed in 2014 with LS and spent years and tons of money trying to bring this thing under control. I only considered the connection between LS and the implants last year when my sister mentioned a documentary she watched on the link between autoimmune diseases and breast implants. It's called BII (breast impkant illness). No scientific studies yet, but lots of anecdotal testimonies worth hearing, including mine. I had my implants removed this past November and feel 100%. No more painful sex, no more issues.
So to you ladies out there with breast implants and LS, consider removing them. It might be the solution!
Good luck to you all; keep trying! This disease dire not need to control your life!
peace,
AS
joannah kweega
Posted
They always start you on the cream knowing many patients have a bad reaction. i guess because it's cheaper. The ointment helped at first. Now i use Coptis and emu oil.