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i have MANY questions. Im at early stage Lichen Sclerosus. I have one lightly colored spot on my labia minora and have itching, but not the intense itching most describe. I do catch myself scratching in the middle of the night, which sucks because you cant control sleep scratches!
im 36 years old mom.
question 1: how quick does lichen sclerosus progress?
question 2: Does everyone who has it end up fusing and losing their womanhood, even with treatment?
question 3: im in a new relationship, will i seriously not be able to have sex again?? it doesnt hurt to have sex right now, but fear that it is in my near future. is it ok to be fingered and have the clitoris rubbed?
question 4: are you still able to go out and enjoy life? or does it end up hurting so bad you become a miserable wreck and stay home all the time? Can i still be a happy mom? Can i still work? will i be disabled? it seems like a condition like this would prevent people from being able to walk?
question 5: i know a lot of you only use your clobetasol during a flare up... why do you choose to do this when every article says you must continue treatment forever to help prevent flareups?
question 6: if i dont scratch, will i still get scarring?
question 7: if i continue to have sex, will it prevent my vaginal hole from skrinking?
question 8: will this get worse or better once i hit menopause?
question 9: why arent there ANY happy stories about women living their lives and still happily married and still having sex, and not in pain? is it because there are no people like that? is this my future? a grumpy lady?
question 10: how do you get through the depression? i have many issues, and i definitely wasnt prepared for another issue. i was able to deal with all my issues and be happy after i found my boyfriend who didnt care about all that stuff and loved me for me. But NOW..... if we cant have sex.... then...we will be like... friends. and that is going to be awful. i love being intimate with him. Hes the first guy i actually really WANT to be intimate with. i dont want to become depressed and in pain and ruin our relationship.
question 11: are there any stories of women who have a mild case and it never progesses to anything worse?
like i said, im in the beginning stages so i dont have any pain or fusing, and i can still have sex(although this morning it felt irritated). im just really scared. im panicky and check my area like 10 times a day. Discovering a disappearing vagina would be terrifying for me, what were your emotions like when you discovered fusing and loss of architecture? Losing my boyfriend would really suck. and it would be even worse if i couldnt be a fun mom to my kid. how will this affect my overall life??????
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