Lichen sclerosus, vulvadynia, endometriosis and ovarian cysts
Posted , 8 users are following.
Hello, im new to this site as i have just been diagnosed with lichen sclerosus, vulvadynia, endometriosis and possible ovarian cysts and I'm only 23 and finding it all very hard to cope with, I'm wondering if anyone has any advice on how to cope with it mentally, emotionally and also physically? Tips on how to help the pain and help control the condition would be much appreciated.
0 likes, 12 replies
Ribi Snowlily
Posted
I'm new here and undiagnosed as yet, so far with regards to symptom relief I'm probably no help but I've tried vinegar after peeing helps a little coconut oil helps a little sylk lupe helps a little ice/ heat helps a bit bagisil lanacan canstean not a lot probably less than the others. Currently I've taken murefen portion and more sulpadine than recommended. And I've spent 3 hours crying. The one thing I keep reading is emu oil which I've not tried tomorrow I'm shopping for hydrocortisone cream and soy bean pills which I supposed to be good for dryness. Essentially I have no helpful advice other than you aren't alone, and it's really scary but at least here you can put it into words, and whilst we are all different here someone gets it. I hope you get some peace this evening. Xxxx💛
sheila49099 Snowlily
Posted
I would start with a glass of wine!.....kidding!
Welcome to this group. I know you don't want to be here 'cause none of us do. Read through the things on this line and you will find a lot of good ideas, warm companionship with a bunch of caring ladies. Â Keeping well lubricated is really important. Â I use coconut oil but really anything that works for you is the right thing for you. We are all different. Â What words of wisdom did your doctor have for you? Â If you didn't get any help than move on quickly to get a sympathetic medical person. Â Keep us posted with your progress.
Hugs
 Sheila
Snowlily
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Snowlily
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Thankfully I do have quite a sympathetic gynaecologist that did give me some tips on how to help ease everything, also that I need to change my diet as well as that can help and maintain a healthy weight. I only just gave birth to my second daughter 6 months ago and she had to be delivered via emergency c section. Finding the baby weight hard to lose this time round she also said that keeping well lubricated is key too. It's so nice to have a bunch of lovely ladies to talk to about this who understand this forum is a godsend 😊 i think we need all the glasses of wine and hugs we can get xxxx
auburn2000 Snowlily
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Snowlily
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auburn2000 Snowlily
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dani2590 Snowlily
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I'm 25 and was diagnosed in January. The ladies on this forum have been wonderful. You've come to the right place. And I always feel less alone when reading of other women in a similar age group to myself.
Snowlily
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auburn2000 Snowlily
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samantha1970 Snowlily
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i havr LS, which currently is at the beginning stages, but have also just been diagnosed with vulvodynia. I discovered what I have about 6 months ago, but have had symptoms for about 4 years. The vulva dermatologist doctor just advised last Friday to use Lidocaine 5% cream for the vulvodynia , I, waiting for my prescription and will pick up tomorrow. But, I can tell you that I have Emla which is 2.5% lidocaine and started to use it massaging in 3x a day. Wow, no pain for the first time in 4 years, the doctor said it will take 3-6 months to retrain the nerve to stop sending messages to the brain but it will work and the pain should go away. As for the LS I have to keep an eye as its early days. Lidocaine can be bought in Boots or on prescription. Let me know how you get on. Samantha
suedm Snowlily
Posted
I understand that a sudden change in hormone levels can be a big factor in being diagnosed with LS- and giving birth is certainly a condition where the hormone changes go into over drive! - and of course increases the stress levels. Do try NOT to stress about the condition - it will not help you to improve and is likely to make the various conditions worse.
Stress management is hard but one way is to concentrate on the GOOD things inyour life and dismiss the bad as fast as possible. Do things you enjoy doing- cept diving into a box of chocs- or bottles of too much booze! Natural endorphines are produced in the body with exercise and laughter.
Mindfulness training is an excellent way to understanding you your experiences and your body - try it
Other advice: a survey has recently been printed on this site do look at the results it will make interesting reading. AND check out the Dr Goldstein's webinar. All the information given is v useful, and of course read other threads a lot of info is offered. Keep the skin of the vulva protected against urine andother body fluids as much as pos, and regularly look at the area AND STOP STRESSING if you can
good luck Sue