Lichen simplex and the young adult

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So, I have joined a few forums on here which have been great for information on lichen simplex. However, most are post menopausal women, and I can't be the only 20 year old suffering from this.

I am wondering if there are any other girls my age that have tips or general knowledge on flare ups / partners and sex / how to control it?

I seem to have had a constant flare up for 2 months and have been using my meds.

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  • Posted

    I'm 29 I was diagnosed a year ago I have changed a lot of things over the past year I am gluten free I take wheatgrass,turmeric,shatavari,biotin coconut oil an Schiff gummie pro biotic every day

    I spray witch hazel down there every time I use the restroom dab dry then apply the purest aloe Vera I can find I will have to look up the cream I use I had to have it switched because the steroid cream wasn't working with my husband it has been hard but I have found rhe the more I share rhe the beter we were havind a dry spell for a while and he thought I just didnt want to do it but it was painfull once he found that out he understood

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  • Posted

    Hello Hojo,

    Based on the idea that LS is an autoimmune condition, you need to stop doing things that inflame your body. Stress is common and of course what you put in your body. There are common groups/types of food that create an inflammation response in the body - for some it is gluten, others dairy, or eggs, sugar or nightshades etc. 

    Try a brown rice hypoallergenic elimination diet. (google it to get the full details). It's a restricted diet centred around brown rice and vegetables. You eat it for a while, calm your body down and then slowly reintroduce a group. As you introduce the food group, you look for a reaction (skin, headaches, bowels etc). If you don't have a reaction you can eat it, if you do have a reaction, you know to avoid it which in theory will help keep flare ups at bay. 

    I also use an app to track the things that I do and what they do to my body. In addition to the LS I have lichen planus and another body issue so there are a lot of things I do (or don't) that can affect me. 

    I'm not in my 20's, but I did have it then however I didn't have a diagnosis. My perineum used to split back then and I was told by the doctor to stop having so much vigorous sex. It took my a number of doctors and turning 50 to get a diagnosis and I am quite far gone now due to not being able to keep it in check.

    I hope you find relief soon. 

     

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  • Posted

    Thanks a lot for this information, I will try the elimination of foods to find out what the changes etc are and I think I'll try the vitamins etc.

    I hope that j will be back to my usual life with my partner and within myself as soon as possible and hopefully it will die down. Please carry on with tips on here to help anyone else in this situ and scared to talk out

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  • Posted

    Hi Hojo! 

    I was diagnosed with Lichen simplex chronicus two months ago after several months thinking it was untreatable candida .At the beginning the dermatolgist gave an streroid cream that worked pretty well , but I started to discontinue it very soon and  my symptoms came back .She added me an antihistamic that seem to work also but twelve days ago I got a flare and I have not been able to get rid off this flare even with the new treatment she has given me which is protopic a calcineirum inhibitor  .I have been using it for the last six days and I still feel itchy .I am not sure if it will work or should have already started working .Howe are you doing? Are you using any steroid cream ? Any other treatment? I have not find anyone with this condition and would be very glad to know how you have managed it.

    best wishes,  

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