Lichens sclerosis disorder

Posted , 4 users are following.

The vulva has skin completely grown over. Very painful can this cause cancer

0 likes, 3 replies

3 Replies

  • Posted

    Have you had your condition checked out by a Medical professional.  You should be dealing with a vulval disorders specialist as you seem to have reached an advanced stage of the condition.

    Please get it checked out professionally.  Are there medical professionals you can go to for this?!

    • Posted

      You say you have been to your GYN, how recently was this?

      As I say, you really need to get to see a vulval disorders specialist to get your skin fusing issues halted, and hopefully, the right treatment regime put in place.  PLEASE do this - you may need to be insistent that you get to see a specialist.  The alternative is, if you live in the UK is to go to a GUM clinic (no, LS is not an STI / STD related condition) but they should get you a referral to a vulval specialist,  Again, you may need to be assertive about this, but if they check you out, they will see how advanced your condition is!!!  In addition .... have you seen the main posting on this site for "New to LS - Start Here" that is a good place to post as you will then get some wonderful women who are particularly empathetic to women who have this awful condition.

      https://patient.info/forums/discuss/new-to-ls-start-here-297241?order=latest&page=0#topic-replies

      I am a male who has probably had LS most of my life - but most men seem to get away with not having the same severity of impact with the condition that the majority of women experience!  Please get to see specialist ....

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