Life after PE

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Hello everyone! I was diagnosed with having PE at 20 years old. It has been a year from then and I was on blood thinners for 3 months and I have not been any longer. I am concerned because while I had PE and sometimes after I have been getting bronchospasms. It feels as if the air is escaping me. It will happen out of nowhere and has been more frequent. I tried going to a doctor and the doctor thinks I am making it up or maybe I'm paranoid but I know how I feel and it is scary! Has anyone had bronchospasms associated with their PE? Should I be concerned? Thank you!

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  • Posted

    Dear Cristina,

    I am sorry about this and what you are going through! It is perfectly normal to feel this way! My daughter had PÉ two years ago when she was only 14 after a long haul flight. She was on Rivaroxaban for 6 months! I believe you should have been on it for longer as they need to find out the cause of your PE! Do you take contraceptives? My daughter’s case was investigated for nearly 2 years and after over 15 blood and genetic tests, they found nothing that could have triggered her PE apart from the flight. Did you do any physiotherapy? If you feel this way, I suggest you going back to your doctor or hospital to get it checked, even if it ends up being anxiety! But it is better to be safe. I suggest you try and find out what caused your PE. My daughter and I are constantly anxious as she is so scared of having another one! We are considering seeing someone we can talk to. We have done another long haul flight again but now she needs to have heparin injections before flying, for life, as a precautionary measure. Don’t feel guilty to see someone as this is a scary event and not an easy one to go through! Good luck ok? 

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  • Posted

    I had my last PE in Jan. I'm still on Xarelto and I get chest pressure often on the left side. I've been checked numerous times and I'm fine. The Dr. thought after everything I had gone through that it could be anxiety and would get panic attacks. So got on anti- anxiety pills, but I still get the pressure. 

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  • Posted

    Hi I had pulmonary embolism in 2016. I started getting breathless recently. Crushing feeling in my chest.etc. I got so worried I asked the local pharmacy for advice and they rang my doctor straight away. I had a D Dimmer test straight away which was clear. Then chest x-ray and blood tests blood pressure monitoring. All came back clear. Following the results I felt much better. I now know it is anxiety. I am constantly looking for symptoms of another PE. 😲 Now I will put all that energy into relaxing and controlling the anxiety I feel. 💗

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  • Posted

    Hi Cristina, my 17 year old had a PE when she was 14 and felt like you for a long time! We had constant hospital visits, especially when she had a cold and felt breathless, rapid heart rate, etc. This is all very normal and you should find a way to relax and take your mind off it! Obviously pay attention to your symptoms and always look for help but know that this is all normal and Doctors understand how you feel! Don't feel guilty to look for help and check your symptoms are normal! You are not alone!

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