Life after Radioiodine treatment

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I had an overactive thyroid and had to have radioactive iodine treatment in 2012

I have been on 100mcg of levothyroxine ever since and have never felt right ever since

i still feel overactive its hard to put weight on and neverr felling right,  yet when i have blood tests they say i am in the right parameters.

 

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7 Replies

  • Posted

    Many patients feel as you do and feel better when they are on a combination of T3/T4 thyroid replacement hormones rather than just T4 (levothyroxine).  You can talk to your doctor about this.
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    • Posted

      They do prescriptions for T3 in Canada.  The drug name is called Cytomel.  T3/T4 combinations are also available through compounding pharmacies and requires a prescription.  I was on Cytomel at one time.
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    • Posted

      will have to talk to my endocrinologist

      Im in London UK hope the endocrinologist can help as the GP is useless

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  • Posted

    Hi Kevan54868,

    I think by my own experience that it is much better you treat your thyroid problem with an endocrinologist. In the beginning I had been treated by a GP doctor and it didn't work good. After an appointment with an endocrinologist everything got better. They know better about this decease than a GP doctor.

    I live in USA and each country has theyr restrictions about medications. I hope you can have T3 replacement where you live.

    I hope you get better soon.

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  • Posted

    Hi Kevan

    I had RAI in February and after a few weeks felt better. I am not taking any meds at the moment. My latest blood tests apparently show that I am still somewhat hyper but I feel OK. I see my endo at the end of next month. I did put a few pounds on initially after the treatment but then dropped again, I do feel well though. Good luck with getting your medication sorted.

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