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I have sat on my experience for about three months now as I wanted to share the aftermath of my thyroidectomy.
The surgery went better than they expected as they expected me to have a horse voice but when I woke up from surgery I just felt a bit hungover and I was really chatty. There were no complications.
Since the surgery I have been put on 100mg of levothyroxine and 75mg. I found that on 100mg I felt hyper and a bit anxious yet on 75mg I felt underactive and low. So as they do not produce 10mg or 5mg, which would let me have a dose between 75-100 they told me to average it, therefore have 100mg one day, 75mg the next day etc etc.
Since this medication change I still feel like a bit of a yo-yo of emotions but I do think it has gradually balanced out. In this time I have moved cities to University.
Now I have not seen my endocrinologist, and I was sure I was 100% scheduled to see him in October, so I have started to panic a bit. In the UK, if you want to see your endo you need to go via your gp and even if you do ring the hospital where your endo works it doesn't mean you will get through to them.
Anyway, getting to the point, since at university I have felt rather low, sleeping for hours yet not feeling awake regardless of how much sleep I have had and my biggest concern is that it doesn't matter the distance that I walk or weather the surface is steep or flat I am finding that I have this weird background out-of-breath feeling going on.
Since this has gone on for two years now I just want to feel like I have energy, and not go around feeling like there's something wrong with my breathing. When I was overactive I had to stop every few meters as I was out of breath but this is different, its not affecting me getting places, its just annoying and my intuition says there is something wrong. Has anyone else experienced this?
In addition to this post I will be phoning my gp today to chase it up as I know I have put my head in the sand about it, I wanted to be fixed, even though I know the journey to recovery isn't finished yet.
I don't want this condition to ruin my experience at University as I feel as though it is. I also don't want to feel isolated, depressed and sad for no reason. Please if you have experienced this can you reach out to me? Do you think the dose I'm on is too low?
I hope everyone else's journey isn't so rocky.
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