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Life after Zoladex

Posted , 6 users are following.

supercargo
supercargo

Completed 2 years of Zoladex injections 25th September 2015. Psa blood test this week remains less than 0.1  biggrin

Still having hot flushes and night sweats, understand these could go on for 18 months after stopping Zoladex.

Next blood test and Oncologist check up April 2016

1 like, 14 replies

14 Replies

  • Washie
    Washie supercargo

    Posted

    What happens now .Fully recovered? Other than blood tests. 

    • supercargo
      supercargo Washie

      Posted

      Hi Washie

      I think I regard myself as 'fully recovered'.

      Oncologist needs a blood test before I see him, then I think I get a recall every year or so, to monitor the situation.

    • supercargo
      supercargo

      Posted

      Hi again Washie

      See from your profile that we are the same age, and you takig the same route Hormone/Radioterapy.

      Any questions, please ask.

  • Washie
    Washie supercargo

    Posted

    Hi Super .  I am just on Zoladex. No radio. As spread in lymph nodes. 1st PSA down from 168 to 19 after just 5 weeks .next test mid Feb.        

    Looking good for you - ----hope I go the same way.

    Washie

     

    • supercargo
      supercargo Washie

      Posted

      Hi Washie

      Your Psa going the right way, another drop in Feb will give you a lift.

  • george28545
    george28545 supercargo

    Posted

    I also complete 2 years on Zoladex on 9 Feb having had Prostat previously from which I had a rash.   Hot sweats annoying and now mainly at night.  I am due to have  a CT scan on 20 Jan and see my consultant on 28 Jan.  PSA has been 0.01 so our stories are similar.   Maybe mine is diferent as I had prostate removed Jan 2013 and cancer regrew in the Prostate bed a year later.   So after two TURPS  a Biopsy and removal I am feeling good about what is now three years from the Gleason 10 I confronted.  Good luck and best wishes.
    • supercargo
      supercargo george28545

      Posted

      Hi George

      Great news coming down from a high Gleason. 

      As my GP comments, the annoying night sweats are a small price to pay.

      Good luck with the CT Scan.

    • FoxT
      FoxT george28545

      Posted

      Hi George.

      Having a Turp on Jan 26th. Naturally I'm a bit scared (Laser up the willy & all..!!) How did you find it, were there any problems etc, how long recovery and why did you need a second one?

      Any help appreciated. 

      Thanks, Foxy

    • george28545
      george28545 FoxT

      Posted

      Hi Fox T

      My first TURP in 2012 was a doddle and I went home the following day with a "Star Patient" badge from the Nurses (I think everyone gets one!).

      Following a later biopsy and a further TURP I did have bleeding for a week or so and incontinece but that had mucked about with that area rather a lot.   Feeling good now at 78 with only the odd drip or urine but no sexual urges - darnit. - Most importantly I am alive and kicking 3 years after removal op and with a PSA of .01

    • FoxT
      FoxT george28545

      Posted

      Thanks George. 

      I've had an in citu' catheter since May (failed 'TWOC' in August) so a litle concerned how long it will take my bladder to regain the capacity to 'hold water' Incontinence scares the 'bejaybers' out of me, more so than PC!

      My PSA has dropped from 27 to 0.75 in 6 months (last test November) I'm on Prosap injections only as cancer was detected in a Lymph node (3-4 mm)! Apart from a little swelling after each injection and the 'outside plumbing' I feel fine. Have got some weight gain from the increased hormones but hey...

      Glad to hear your your doing well. Good luck for the future.

      Fox T

  • FoxT
    FoxT supercargo

    Posted

    Way to go man. Thats excellent news. I'm on monthly Prostap injections and after just 5 months (Nov 2015) my PSA went from 27 to just 0.75. 

    Having a Channel Turp on 26th this month. Bit scarey but prognosis is good.

    My next test is Feb 6th. Fingers crossed. 

    Having read about other people on here, seemingly hot sweats etc are not unusual, even after coming off injection for anything up to 2 years later. I find sage tablets work for me in reducing them. (down to around five, 5-8 minute ones a day).

    Good luck and be strong

    Foxy

  • ken47739
    ken47739 supercargo

    Posted

    following Gleason 9 diagnosis in Dec 2010 and surgery PSA of approx 2 three months later.  Started 2 years of Zoladex and radiotherapy in Dec 2011.  Since 2012 have been undetectable PSA.  Hot flushes continued until mid 2015, still get the occasional flush but nowhere near as intensive.  Tried every menopausal treatment at the pharmacy, acupuncture, homeopathy.  The only effective treatment I found was to accept it.  Zoladex totally suppressed any sexual urges, this is slowly returning, but the surgery still having an effect.  My wife has been brilliant.

    Just happy that this year I will be 70 and should be here to celebrate, could have been so much worse.

    Positive thoughts only, good luck

    KenW

    • supercargo
      supercargo ken47739

      Posted

      Great post Ken

      It will give other Forum members positive news that you can beat this disease.

      Since I was diagnosed, in discussion with others who have PC, I have found that early diagnosis and treatment is critical. Unfortunately some go into denial. Although the Cancer is reported to be slow growing, I find that some friends who have not conquered the disease have either ignord, or delayed treatment.

    • andrew227er
      andrew227er ken47739

      Posted

      Hi Ken,

      Just read your post and looks like you had the same diagnisis as me. Had prostrate removed Nov 2015 (robotic), but post op PSA was 1.2 at 6 weeks and 1.1 at 8 weeks. Gleason score 9 nut all clear in margins, bones, lymph nodes. Got to have scan to see if any rogue cells have spread anywhere, then possible radiotherapy and/or hormone treatment. I assume the Zoladex is the hormone treatment? So glad to hear that all going well for you. I must say I felt a bit p*ssed off today after seeing my consiultant, but it was cheered up a bit reading your comments. Onwards and upwards!

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