Life and tapering to 25 mg
Posted , 7 users are following.
and it's not fun. Just here for a little whine. My body is not at all amused. Not a flare, just general aches and pains, fatigue, nausea, etc, only this time I have a cold on top of it. Think I picked it up visiting my Rheumatologist last week, thus proving it was a waste of time .
Next doctor visit is the neurologist to discuss my expanding peripheral neuropathy, which is now beyond my head and face to my tongue, mouth and legs. Not sure the cause, but noticed it a week or so after biopsy for GCA.
I did get a clean bill of health from my dentist whom I visit every 4 months now. He says my teeth are fabulous. They should be since I brush them 2x every day, 5 min each time with a sonic tooth brush, then floss. Totally freaked out about what all these meds are doing to my teeth: Prednisone, LMWH, gabapentin, you name it, i'm on it. It was nice to go to a doc and hear good news for a change.
oh the fun of it all. It made celebrating my 54th birthday so much fun, lol. I did get a panini maker from hubby and kid, which was totally cool. Even though I only eat solid food for dinner (and can barely taste anything due to the neuropathy) I did want a panini maker and it's totally cool. they should be government subsidized :D.
Meanwhile I've continued to have my play dates for my daughter while sick. I'm starting to appreciate the custom of marrying your daughter off at age 10. Odds are against both of us making it thru this summer. stay tuned...
0 likes, 7 replies
Juno-Irl-Dub LisaCACO
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tina-uk_cwall LisaCACO
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i love the idea of the panini maker, when I was reading it I immediately thought what's the point of that poor lisa's on a liquid diet, so it's good to hear that you're onto 1 meal a day, it's a start ok.
Yes this neuropathy is proving to be as big a pain in the a...as PMR. So I really hope it's sorted soon in the meantime I hope you're walking around with a huge smile on your face, those dental appointments must be costing you a fortune in which case you must show them off!! Get well soon, regards, christina
LisaCACO tina-uk_cwall
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Mrs.Mac-Canada LisaCACO
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I'm really sorry to hear your latest problems. I wish you could be in some medical study group with expert doctors. Maybe you'd find someone that could help you.
I know absolutely nothing about this but has anyone talked about plasma exchange with you? I just read about it and it is used for people with autoimmune diseases that don't respond to other treatment. 😷??
Would it be possible for your daughter to go to camp or ?? for a week so you could just do nothing but look after yourself. You are so amazing to keep your spirit up the way you do but some real down time might be good for you.
There's only one way to go and that's up. Hope it happens for you soon.
Hugs,
Diana🌸
LisaCACO Mrs.Mac-Canada
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Plasma exchange, huh? will look into it. I do wish I were on the two coast of the US. that's where most of the research seems to be happening. I'm in Denver, CO and zip is happening here. With hindsight I'd have stayed in California or moved back east. These diseases should give you advance warnings.
EileenH LisaCACO
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My daughter was wondering the other day how she was going to survive the school summer holidays with her step son! She loves him to bits but he wants to talk all the time - which she doesn't. He is 16 though so they're hoping for a summer job before he starts A-levels (the last stage before working/college).
LisaCACO EileenH
Posted
hope you're enjoying china :D.