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Life feels like a brick wall

Posted , 3 users are following.

arual2014
arual2014

I know ive been posting a lot lately but am getting so fed up.

I think this is the longest flare up ive had in the two years since diagnosis.

My days just seem to be like i am constantly fighting to feel awake and to focus. All my body wants to do is sleep but when I try my mind is still going 101mph.

Going to get a sight test next weekend because the lack of being able to focus is doing my head in.

So is the constant aching from my head/scalp and down my neck and back.

Just want a magic wand waved so I can feel normal again :-(

0 likes, 5 replies

5 Replies

  • Boqer
    Boqer arual2014

    Posted

    Hi Arual

    i know how you feel! Have you had any trauma recently or when your fibro started, and do you have a lot of repressed emotions, or things you feel you can't talk about?

    • arual2014
      arual2014 Boqer

      Posted

      Not really. It all started when I lost my mum and mother in law to cancer two months apart from each other. I have had a cold recently and I changed jobs in October and now work with 2 year olds which even though thoroughly rewarding does tire you out. Have found an acupuncture clinic hopefully going to next weekend so should maybe get rid of some tension in my muscles
    • Boqer
      Boqer arual2014

      Posted

      Yes, acupuncture seems to help these things. I hope it works for you
  • mel77
    mel77 arual2014

    Posted

    Hi Arual:

    The trouble with fibro is you never know when it can flare up.  I have it as well but when I got it first, I can't really say.  It has been diagnosed over 15 years ago.  Your right when you say tired.  It takes a toll on your body.  I am constantly sleepy during the day and I get little sleep anyway.  When I get up in the morning, not only the stiffness I suffer from getting out of bed but sometimes the leg cramping gets bad too.  It also takes a while to focus my eyes.  If you haven't had an eye test in awhile, by all means do so.  When was the last time you went to a rheumetologist?  They are better equiped to test you for various conditions and don't be surprised if they test you for other things.  I had numerous sedemation rate blood work and it show that the sed rate is quite high for me.  When it is high, this can determine how much inflamation that you have.  Many doctors say that it is not an autoimmune disease.  I am not sure about that.  If that were so, why would my rheumetologist want me to go on Embrel, humira, and Remicade; all used for autoimmune diseases.  Sorry but there is no magic wand and if so, I would have used it.  The only thing I would recommend is to do your research on these diseases and at least you will have questions to ask your doctor.  Be your own advocate as nobody can do it for you.  I hope you will get a handle of things and try to feel normal as you can.  Personally, i don't know what normal is for me.  I learned not to compare to others for my pain and my condition.  At least here you will get lots of feedback.  So, don't feel alone in this and I wish you well.  Take care.

    mel

  • kaz_40
    kaz_40 arual2014

    Posted

    Hi arual2014 Bless you you have been through alot recently loosing your mum then your mother in law in a short space of time. Then being un well yourself  and changeing jobs. fibro feeds on our emotions and when we are ill with something it makes things 10x worse. listen to what your body tells you dont try to fight fibro as you wount win. stress worry upsetment makes our fibro worse. just take each day as it comes. Try a milky drink hot bath see if that aids sleep. I wish we did have a magic wand to wave over us all. Hope your eye sight test goes well for you. You will get through this flare but with what youve gone through it will take time. Take care 
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