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I know so well how other sufferers feel. My original diagnosis was a balance problem cos I was dizzy and confused all the time. Felt I was going to fall over. That was 22 years ago! Numerous tests over the years including balance tests, hearing tests and an MRI have all concluded everything about me is normal and healthy. So why have I suffered so badly for 22 yrs? Over the years I have proved to myself I do not have a balance problem by making myself do scary things like climbing ladders, staring at the ceiling or sky, jumping up and down and basically getting on with life. However, although I now know the original diagnosis was incorrect and there is actually nothing physically wrong with me, this has had no positive effect on the range of symptoms I suffer daily. I find the worst one is the head pressure and the dizziness, so bad I can hardly think straight never mind live a normal live. My head seems to pulsate in tune with my pulse, a horrible sensation that never leaves me. Sometimes the room spins round, very frightening. I have been treated for anxiety with anti depressants for about 18 yrs. Yes, they do help but only in managing the symptoms not eliminating them. This thing takes you over, it is overwhelming and changes you permanently. You become so inward looking that life just passes you by, you do not feel a part of it. Each day is just another day to struggle through with all feeling and pleasure removed. I have a thorough understanding of this condition having read so much over the years and experimented with my own physical symptoms and feelings I think I know it inside and out. I know it won't kill me but none of this makes it any easier to live with. I just want my life back.
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