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Life without Pred

Posted , 4 users are following.

hilary_76724
hilary_76724

as some of you know I was diagnosed a few months ago with PMR. Can't take Pred because of previous stomach ulcers which had perforated. Had an injection from my Rhematologist depo me drone which was magic, another two weeks ago and a third today. He suggests rather than cutting the dose down ,, 120 mg I space then out further apart to gradually reduce the dose, I feel brilliant on them and no side effects. He worked out that over two weeks I am currently having about 9 mg a day.  He is going to teach my partner how to administer them so I haven't got to go to hospital every time for them if we are away and they run out. It's administer as needed but this last one lasted 4 days longer than the previous one. So far so good

 

2 likes, 4 replies

4 Replies

  • tina-uk_cwall
    tina-uk_cwall hilary_76724

    Posted

    Hello Hilary, good to hear that you have found a way to treat this PMR given your special medical needs. Good luck, christina
  • FlipDover_Aust
    FlipDover_Aust hilary_76724

    Posted

    Sorry, I don't quite understand - you are getting steroid injections instead of taking them orally?
    • hilary_76724
      hilary_76724 FlipDover_Aust

      Posted

      Yes unfortunately I can't take them orally due to two previous stomach ulcers which perforated. I tried oral pred for a week but despite taking 40 mg of Omeprazole, which I i have had for years, I had terrible heartburn. The injections are supposed to be better for the stomach.
  • EileenH
    EileenH hilary_76724

    Posted

    That's good - hope it continues to be OK. 

    I know some doctors use injections for diagnosis - in fact often the diagnosis is made when someone has a steroid injection for something else.

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