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Lightheaded for 6 months

Posted , 5 users are following.

kina86635
kina86635

Hi please help me.

I’m a 21 year old female and I’ve been having this pressure in my head and foggy brain for 6 months. It all started when I got back from Europe (I should note that I did go on a cruise to Mexico a few weeks before and some say this could all be MDDS... but I didn’t even get sea sick and I am not dizzy— I’m lightheaded). I was fine, and 3 days later I got the flu. I was in bed for 20 hours and couldn’t move. Ever since that day, I had a weird feeling like everything I looked at wasn’t real. Or as if there was a film between me and world. The typical feeling you have during the flu (or at least I do). Two months later is when the real stuff began. I got some good news from a friend about a party, and during my celebratory dance, the lightheadedness/faintness just hit me. It was so weird because before then, the only time I ever experienced lightheadedness was if I got up too fast from laying down. I went to primary care low vit D and B-12. Started supplements and B-12 shots. Then moved from southeast (Georgia) to Albuquerque and it all got so much worse (Altitude I’m assuming). Got mri, ct scan, eeg, ver, baer, blood work and no alarming things in the results. They said I had sinusitis, but after weeks of Allegra and Flonase, that was gone. And I’m still left with the debilating lightheadedness. Sometimes it’s hard to even leave the house because I feel so faint and out of it. I will say, when I visited Florida for a few days, I felt a little relief, but not 100%. I’ve stated acupuncture and he has me taking the Buplereum & Tang Kuei Formula supplement and the Blood Palace Formula supplement. It’s only been 2 weeks of that, so I don’t have real results yet. Every day i wake up and i hope it’s all gone and cleared up like a cold, but after about half an hour, i feel that woozy feeling in my head again and i have to try to power through. I should also say that I have lots of blood work and no doctor detects sickle cell or lupus.

Has ANYONE been through the same thing and have found answers? I’m desperate!!!! I work long hours and I love my job. I want to be able to enjoy life without being miserable everyday. Please help!!!

0 likes, 24 replies

24 Replies

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  • hmoosey
    hmoosey kina86635

    Posted

    Also I would keep track of your symptoms such as headaches dizziness fogginess confusion nausea.  It helped me because my memory was so bad. When I had these symptoms I started adding them to my calendar on my iPad to bring to the doctor. Otherwise I would forget to mention things.  I am on a medication now that has wiped out most of these symptoms the doctor is now going to increase it slowly until all the symptoms are gone. If you see a doctor that doesn’t know move on to another one.  Had I not pushed and pushed and not accepted that I will get better with time, I would still be confused and sitting here not knowing what was going on around me.  I still have vibration in my ears and get tired easy and only a few things bring on the dizziness now. Since I kept track of it I was able to tell the doctor what I was like at my worst and what I am now since I started the meds.  Don’t just accept you will get better with time... don’t accept they don’t know... there are doctors that do know.  My third diagnosis is vestibular migraines.  You don’t even need to feel the headaches to have this. 
  • ana85762
    ana85762 kina86635

    Posted

    Were you on any type of meds before this happened ? Vaccines ??

    Have you had a lyme test done ?

    • kina86635
      kina86635 ana85762

      Posted

      I did have the flu vaccine. I don’t believe Lyme disease because I’ve had a lot of blood testing and I don’t have any of the symptoms.

    • hmoosey
      hmoosey kina86635

      Posted

      You should get the Lyme disease test.  The ENT ordered it and it was negative.  The otolaryngologist ordered another one Monday because he said it can take a while for the antibodies (think that’s what he said) to appear. Get the blood test just to rule it out.  All this stuff is just ruling out one thing after another.  
    • kina86635
      kina86635 ana85762

      Posted

      Hi Ana,

      Sorry for the late reply. What was the antibiotic? Was it monocycline or doxycycline (I'm sure i've mispelled)?

  • kina86635
    kina86635

    Posted

    I've just gotten back from the ENT (yes still feeling lightheaded) and she has diagnosed me with PPPD which is persistent postural perceptual dizziness! FINALLY A DIAGNOSIS!!!! I cant believe there is finally an answer out there. If you are suffering from the same symptoms as me, please ask your doctor about PPPD!

    ALSO, nortiptyline has been helping a lot.

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