Linchen Schlerosis / Biopsies

I'm so sorry dear Tori, I had a biopsy too and it hurt like hell.  I guess we can hope that it was helpful.  Try the soda soak baths and maybe the borax soak too.  It will heal.  All of the info on this forum is helpful.  LS is manageable.  I am old...;.75 (but young at heart tho) and feel like my life is just starting,,,so read what you can and try things.  There are so many other maladies that are so much worse.  You can do this.  Take care and let us know how you get on.

I had stitches so don’t understand there being none for yours.

The first thing I would do is TOTALLY IGNORE THOSE INSTRUCTIONS !!! NEVER use soap OR Vasaline with LS. Soap will irritate and Vasaline is a petrochemical and not good for ANY skin. I'd be inclined to use just plenty of clean water or maybe add some salt or baking soda. You need to use a barrier cream to protect from urine and to moisturise. I use HYDROMOL OINTMENT which is hypoallergenic and moisturising. What symptoms to you have hon ? I understand your panic and upset on reading about LS. The pictures alone had me freaking out but trust me, the best thing you did was find this forum. There is a wealth of experience here and wonderful, caring people . LS cannot be cured but it can be managed. It's an autoimmune disease so firstly look up anti inflammatory diet . Sugar is a major cause of flare-ups. Basically if it is confirmed you do have LS you will have to use a steroid - don't panic over long use of that LS makes skin thicken so it does not have a major thinning effect on MOST women ( though everyone is different) You will use that as prescribed , essential you rub it in for 90 seconds and ask for OINTMENT NOT CREAM as this is absorbed better into the deep layers of the skin where the inflammation is. You will also need to use the barrier ointment to protect and moisturiser the skin. It's really importable that you check your vulva regularly in a mirror. Get to know what it looks like then you can see any changes quickly. When rubbing in your creams gently stretch the skin to prevent any fusing. Stress is also a big enemy of LS though inevitable in this day and age. If you do the basics for a while till you get your head around everything then investigate and experiment as you wish after that. Loads of info on this site but it can be overwhelming at first hence my suggesting you just do the basic steroid and barrier first. Good luck and keep us informed on results and how you're doing. YOU'RE NOT ALONE. We all care about you sands will help in any way we can x

Really sorry to hear you have LS , mine took ages to diagnose, as it came out on my back, quite unusual. I have my LS under control by using the clob steroid cream. I also got a specialist nurse at my local hospital and she was great as she know all about LS. Through this site i heard about dialiators which help stop fusing or the vagina tightening ( Amielle comfort is the name)., this was provided by the hospital. You can find them on the  internet too. I am sure that stress is one of the factors which make LS worse, so try and stay calm and look after yourself. If you look after yourself you will be able to get the LS under control and this site has been so helpful. I amazed by how little doctors know about LS. Take Care x