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LINX or Nissen?

Posted , 8 users are following.

stella19032
stella19032

Hi, just had a letter back from the hospital saying that my ph test was positive, and he's willing to refer me on for surgery. I'm just not sure which way to go now. Do I opt for LINX or Nissen? I know there's quite a few had both so just looking for a bit of advice. Thanks. 

1 like, 24 replies

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  • Lovelane09
    Lovelane09 stella19032

    Posted

    You can't have both, if  you have had nissen it's non reversible and you can. Ever have LINX if you have LINX it IS refers able and you can have nissen but no one in their right mind should have nissen, I'm 12 weeks post LINX and off all meds I feel fantastic and it's laparoscopic    Nissen is a major invasive surgery where they wrap ypur stomach  around your aesophogus     You can never burp again nor throw up the implications are great and it's a very scary procedure

    linx is a totally new procedure but the critaria is sooooo strict 

    hope this helps 

    • stella19032
      stella19032 Lovelane09

      Posted

      Sorry, realised that it would read like that but couldn't edit the post - meant to say that some had had one, some had had the other. 
    • stella19032
      stella19032 Lovelane09

      Posted

      Hey Lovelane, did you have it on the NHS? I know you have to meet criteria. My consultant says he's not convinced by it but I am leaning this way as the recovery period is shorter and I have a 2 year old son. I want to go in armed with info if possible. 
    • Lovelane09
      Lovelane09 stella19032

      Posted

      Yes I had it on the nhs. Not all hospitals do it, why is he not convinced ? It's a groundbreaking f procedure
    • stella19032
      stella19032 Lovelane09

      Posted

      I don't know why he isn't convinced - it's something he said in a previous appointment that I need to ask him about. Did you get referred out of the area you live in? I think there's only 3 nhs hospitals that do it. Just wondering how I go about getting referred to one of these. 
    • Lovelane09
      Lovelane09 stella19032

      Posted

      There are very helpful Facebook groups for both LINX & nissen, I can only tell you what my surgeon said, " nissen is a very invasive procedure" you must make your mind up, everyone and I mean everyone who has had LINX are happy with it, I don't think the same can be said about nissen, yes it's right you can't have an MRI procedure as it's  a magnetic titanium band they implant but you can have ct scans and other investigations,also there is a new MRI device which I have Been told will be available in uk hospitals within 3 to 4 yrs allowing LINX patients to have mri

      this os only my opinion and I'm biased but I think if you research both you will side with LINX every time

      you have the right to be treated in any nhs hosp in the country you just need your authority to refer you 

    • lorray64454
      lorray64454 Lovelane09

      Posted

      Hello I am new to this forum. I am scheduled to have a Nissen on June 14th but I want to look a bit more into the Linx. I have a 5 cm hernia. I am from Washington State and I have gone to Swedish Hospital under the care of Dr. Brian Louie. I would appreciate any feed back as I'm still not sure which one I am going to have. Thank you for all your help. Lorray
  • moonbuggy
    moonbuggy stella19032

    Posted

    Stella

    Before we go scaring everyone. I would like to say there are a lot of people who have had Nissen (I had mine 6 weeks ago actually) very successfully.

    I can burp, eat perfectly normally and was able to vomit (albeit liquid only after a self inflicted evening out). I also had my HH fixed. I have a great gastro surgeon who is very experienced. This op has been done for years and is proven to be fine (as long as you have a good surgeon). By he way Nissen is done via keyhole and I didn;t even need painkillers after 2 days

    I was in the same dilemma deciding which to go for. Not being able to have an MRI scan and there being no Linx data post 5 years surgery made my decision.

    It is a difficult decision to make but please do not be put off by Nissen.

    Good luck

    • stella19032
      stella19032 moonbuggy

      Posted

      Thanks moonbuggy. It makes me feel better to see how you are doing, in case nissen is the route I take smile 
    • lorray64454
      lorray64454 moonbuggy

      Posted

      Hello I see that you did a post over a year ago. I was wondering how you were doing since your surgery. I am scheduled to have Nissen surgery on the 14th of June. I have a 5 cm hernia and I want to look into the Linx surgery a bit more. I was told that it may take a year for my insurance to cover it and then they still may not. If any one could help me as to how difficult it was to pass through your insurance for the Linx surgery I would really appreciate it. Thank you so much. I'm just nervous and want to make the best choice for me. I hope you are still doing well. Lorray
  • andrea55057
    andrea55057 stella19032

    Posted

    I had a consult on the LINX a few months ago. Seems it is a fairly new procedure and not many doctors in my area have preformed the surgery. There was not enough clinical data out there for me to take that risk on this new procedure. I think the main concern with some were the magnetic beads eventually going thru the esophagus.

    The Nissen as I was told by my surgeon is the best tried and true method. I havent decided to have this done yet but if I do I will probably go with the Nissen because I wouldn't want a foreign object around my esophagus.

    Andrea (USA)

    • Lovelane09
      Lovelane09 andrea55057

      Posted

      Maybe you should look on the Nissen & linx sites what about pacemakers and artificial hips and pinned shoulders etc ?

      Foreign bodies yes but also lifesavers I'd rather suffer reflux and gert than have Nissen those doctors that offer Nissen do so because they can't perform linx. It's far safer and less intrusive abd most of all it's reversible.   Nissen means your stuck with it don't take my word for it research it yourself it's a no contest 

    • stella19032
      stella19032 Lovelane09

      Posted

      I've heard the criteria is strict- what exactly is it? Plus where did you go? 
  • Relu
    Relu stella19032

    Posted

    Ask 2 or 3 surgery specialist doctors about LINX or Nissen. If you have hiatal hernia it is posibile that LINX is not very good. 
    • Lovelane09
      Lovelane09 Relu

      Posted

      I had linx I also had a 4cm hernia repaired at the same time 
    • elitest
      elitest Lovelane09

      Posted

      I have previously had STRETTA which doesnt seem to have worked as my pep test showed I was still refluxing so I am keen to try LINX and have the hernia repaired at same time would be wonderful ! Are you able to now eat and drink normally ? Can you tell me whereeabouts in UK you had your op done ? Thanks x
    • Lovelane09
      Lovelane09 elitest

      Posted

      Having had LINX 3 months ago I feel fantastic I can and now do eat and drink anything I want, no more meds either

      i had mine done in the royal Devon and Exeter on the nhs I would recommend it to anyone thought the critariaas I've said is very strict

      there is no way on this earth I would have nissen it frightened me whe it was explained and it scares me even more now I have spoken to many who have had it.   

    • elitest
      elitest Lovelane09

      Posted

      Great - I am in Torbay and I think I am Ok with the criteria having read the website - can you tell me who your consultant was ? biggrin
    • Lovelane09
      Lovelane09 elitest

      Posted

      The critaria is you must not have barretts and there are several tests first to see if the LINX is suitable.    They are.    Barium swallow, ph test , mamiagram.  There are more but the consultant is mr wajed, there are links to him on the RD&E website.  I'm in budleigh so it's my local hosp 

       

    • Lovelane09
      Lovelane09 elitest

      Posted

      Anything you need to know please just ask I'm eternally grateful to mr wajed, I saw him Friday for my 12 week follow up and I'm part of a study to gain stats. 
    • elitest
      elitest Lovelane09

      Posted

      Thank you very much - I will hope to try and do this - is there any way we can get in touch ?
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