Lipoma/Dercums
Posted , 20 users are following.
I am not surprised that this article does not metion Dercums Disease.. a syndrome that some here may have. very little is known about the disease and because of that it is very difficult to get diagnosed. I have 70+ lipomas, many painful, and am quite delibiltated, however it is virtually impossible to get any medical assistance. My doctor and the hospital specialists (endocrinologist and neurologist) have all diagnosed me with dercums but freely admit they cannot find any treatment available under the NHS.
I am now unable to work full time but as the disease is not recognised I cannot get any support from social services or the Department of work and pensions.
I suggest if anyone is suffering the symptons of not only multiple lipomas but also pain, memory fog, possible weight gain and tiredness they research Dercums and return to their GP as we need to get as much info out on this condition as possible
4 likes, 34 replies
Guest Guest
Posted
I would love to go under the knife and have them all done in one go. I dont care about scars. I have heard that Liposuction can be succesful for this too. for those who dont want scars.
if any surgeon wants me as a guinea pig and take these all out, then please feel free!
to anyone having them out, my first hand experience of a successful removal is to instert forceps into the incision and open, tearing away the fibres that keep it attached. if a surgeon tells you they will cut it away, try and get them to use my taught method, it has been much more successful with it not coming back. ALL of mine that were done the surgeons way, have returned!
sab1998 Guest
Posted
could help with this illness, as now I have been told I have them some growing behind my eyesballs, which could lead to blindness in the futher.
Kind regards
SP
Vectra121 Guest
Posted
sarajohnson Guest
Posted
Reasearching any disorder before visiting a physician is excellent advice.