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Lipoma in spinal chord

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debrasd
debrasd

Hi, I'm new. I have been dxd with a lipoma in my spinal cord by MRI. I have been experiencing weakness when walking, pins and needles, back passion and measly, double incontinence. My Neuro said the lions was in exactly the right place to be causing these symptoms and sent me for nerve conduction tests which were performed by another Neuro who said as the lipoma was so rare it was unlikely to be causing me problems (?) and he referred me to a bowl surgeon which seems a waste of time to me. Can anyone give me advice please?

0 likes, 4 replies

4 Replies

  • debrasd
    debrasd

    Posted

    Sorry, Autocorrect! I meant to say back pain and recently, incontinence. He also referred me to a bowel

    surgeon.

  • sforcash
    sforcash debrasd

    Posted

    Hi,

    I'm a 38 year old male and I am 3 weeks out of surgery from both a lipoma in my spinal canal and a tethered spinal cord. I was experiencing pain in my left leg and lack of muscle strength. The Nuero was able to remove 80/90% of the lipoma. I'm feeling better but it's going to be awhile before I can tell you how much relief I get. I do have less leg pain. If you have questions let me know if I can help. Best of luck.

    • emma08381
      emma08381 sforcash

      Posted

      Hi there .. please can you let me know how you got on after lipoma removal from the spinal chord ? My husband has just been diagnosed with this and currently has a very painful spasm once a day .. the specialist said surgery would be a last resort but he is already experiencing symptoms and has been for 5 months. If anyone can shed any light on this we would so much appreciate it.. it’s all new to us and very scary. Many thanks Xx 
  • emma08381
    emma08381 debrasd

    Posted

    Hi there .. how are you getting on with your diagnosis/ treatment? My husband has been told this week he has a lipoma in his spinal chord and we are trying to find out the best way forward from here. Any comments very much appreciated - Thankyou xx 
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