Lipoma in spinal chord

Posted , 3 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Hi, I'm new. I have been dxd with a lipoma in my spinal cord by MRI. I have been experiencing weakness when walking, pins and needles, back passion and measly, double incontinence. My Neuro said the lions was in exactly the right place to be causing these symptoms and sent me for nerve conduction tests which were performed by another Neuro who said as the lipoma was so rare it was unlikely to be causing me problems (?) and he referred me to a bowl surgeon which seems a waste of time to me. Can anyone give me advice please?

0 likes, 4 replies

Report

4 Replies

  • Posted

    Sorry, Autocorrect! I meant to say back pain and recently, incontinence. He also referred me to a bowel

    surgeon.

    Report
  • Posted

    Hi,

    I'm a 38 year old male and I am 3 weeks out of surgery from both a lipoma in my spinal canal and a tethered spinal cord. I was experiencing pain in my left leg and lack of muscle strength. The Nuero was able to remove 80/90% of the lipoma. I'm feeling better but it's going to be awhile before I can tell you how much relief I get. I do have less leg pain. If you have questions let me know if I can help. Best of luck.

    Report
    • Posted

      Hi there .. please can you let me know how you got on after lipoma removal from the spinal chord ? My husband has just been diagnosed with this and currently has a very painful spasm once a day .. the specialist said surgery would be a last resort but he is already experiencing symptoms and has been for 5 months. If anyone can shed any light on this we would so much appreciate it.. it’s all new to us and very scary. Many thanks Xx 
      Report
  • Posted

    Hi there .. how are you getting on with your diagnosis/ treatment? My husband has been told this week he has a lipoma in his spinal chord and we are trying to find out the best way forward from here. Any comments very much appreciated - Thankyou xx 
    Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up