List Of Crohn’s Disease Symptoms

Hi,

Around 2 years ago I started with a vague pain under my ribs that came and went. I had an aultrasound that came back clear and was put on lanzaprozole with seemed to make it worse. Around the same time I started really suffering with allergy type symptoms. These got so bad that I would wake through the night unable to breath and had sores up my nose and eventually nasal polyps. It was as though my immune system was going into total overdrive. Shortly after this I started to experience diarrhoea and bleeding. This got really bad. Like going to the bathroom probably 20 times a day. I saw my doctor who diagnosed piles!! . My tummy was also really tender and I had urgency. I ended up in a&e and they wanted to keep me in. Due to not having enough beds I was fastracked to see a consultant within a few days and given a colonoscopy. During this test they found my bowel to be so poorly that they admitted me on the spot and started steroids. These seemed to work for a day or so and then my symptoms returned. I then started on Infliximab infusions which did the trick - there had been much talk of me losing my bowel. I started azathioprine a few weeks later. I have since cut out gluten, lactose and sugar and have been placed on a high dose of vitamin d. I also stopped azathioprine as this just didn’t agree with me. I currently feel great and am completely in remission. I have also been vitamin b12 deficient in the past but they couldn’t find a cause at the time. 

I hope this helps. 

Hi

All of my symptoms before diagnosis were:

-diarrhoea (going to the loo 7-10 times a day)

- vomiting

- severe stomach cramps

- weight loss (2stone)

- blunt hard pain in left and right sides

- no appetite

- always tired, no energy, pale

- bloody stools from haemroid

After diagnosis:

- diarrhoea but less often

- sometimes feeling sick

- put a little weight back on not much

- stomach cramps

Sorry hopefully this is helpful, I think that's all of my symptoms

Looking back now I had symptoms some 10 years ago. I often felt bloated or full after only a small snack or meal. Another symptom I had often and still recurs these days though in relative remission is that if I don't eat for 3 hours or more I get an increasing gnawing uncomfortable feeling in lower stomach. If I don't eat for say 4+ hours the feeling does not go away even when I eat.

I was diagnosed in early 2015 after non specific pains/cramps before and after meals not relieved by bowel movement. The latter became more frequent with blood at times and I would often go to loo 15+times a day. My GP referred me urgently and after stool samples and a colonoscopy in April 2015 I was diagnosed with severe inflammation with Crohn's colitis. Thereafter prednisolone quickly brought some relief but ongoing Azathioprine and then 6-Mercaptopurine whilst subduing symptoms caused dangerously high readings of my liver and pancreas. From August 2016 to the present day I have been on fortnightly Humira injections and generally in remission apart from an abscess which arose last November. Day to day now BMs are normal and I eat fairly well. I found that omission of fresh milk products to be beneficial though I still enjoy cheese and yoghurt. I still get a lot of unexplained bloating and that nagging pain I mentioned if I don't eat every 2/3 hours. I drink plenty of water and take fibre supplements to ensure bowel regularity. Am always conscious that a flare could be around the corner and keep a close eye on BMs and body temperature which is a good indicator of inflammation. Hope that helps. Pete

Fatigue/exhaustion, Headaches, joint & muscle pain, brain fog (can't think clearly), nausea, mouth ulcers - sometimes very bad. And then the gut pain and discomfort which can be wide and varied, although, personally I don't have to urgent go to the loo - I'm actually on the constipated side most of the time. 

All of the above can have a knock effect e.g. sleep deprived which can cause worse fatigue and impact my vision - like it's tunnel vision.

Take a look at Crohns & Colitis UK for loads of info packs covering just about everything - it's all very well presented and easy to understand.

I’m asking as my doctor doesn’t seem to think I have Crohns, yet I’m not convinced. In the past 3 years I’ve had numerous blood, stool and urine tests, x-rays, endoscopy and two colonoscopies (probably missed other tests done) and the only thing found were haemorrhoids and two positive faecal calprotectin results. I’ve since been diagnosed with Fibromyalgia and IBS, and my symptoms are tiredness, slight nausea, odd bouts of feeling lightheaded, stomach and bowel churning and gurgling. By comparison to all of your symptoms mine are very mild, and they can change from one hour to the next, feeling groggy one minute to feeling fine an hour or two later.

I guess the only way I’ll ever know is if my symptoms take a turn for the worse, but I’ve been like this for at least the last two years, I dont seem to be getting any worse.

I’d be interested to know what you all think of my situation. I keep mentioning it to my doctor, which incidentally is now my third opinion, but he like all the others says there is no point in any further investigation, and if I did have Crohns I would be feeling a lot worse than I do at times.

Thank you all again for your comments.