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litchen scleroses

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jackie73005
jackie73005

Hi i am quite recently diagnosed with litchen scleroses and i am getting obssessed with finding out about it, quite frankly i am a little scared becuase it seems i have so little control over what happens to my body.  I am using dermovate and it does help but the symptoms return as soon as i stop.  Can anyone recommend anything other than a steroid and did anyone find that adjusting their diet helped. Apart from my husband i havent even told anyone because it seems so personal.

Jackie

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  • wilmatm
    wilmatm jackie73005

    Posted

    Hi Jackie.

    I recently found out that the eternal itch i have had since my mid twenties is LS. have never been able to use those pretty smelling soaps powders etc. I also have Primary Biliary Cirrhosis which is another auto immune disease. The first was the PBC after the tragic loss of my son in a car accident and the LS really became out of control with the stress of having a daughter who is out of control and loosing her kids my grandkids. Both times stress has been the precurser of my conditions. I have cried myself to sleep for the past two nights after three weeks of not being able to see my Dr and the pain and embarrasment i am feeling with this condition. I even seem to be allergic to some of the ingredients in the creams.

    I live in a remote area in Nortth West NSW Australia. I too am finding it very difficult to find information. Optus have recently fiddled with our tower and my internet keeps dropping out.

    I am interested in any advice on how to clear up these really open sore spots any one can give me.

    I have even used straight Aloe vera from my garden for the burns from the creams.

    Thankyou every one who shares on this site.

    Wilma

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