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Livial/Tibolone Beware

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Guest

I am 53yrs old and was precribed Tibolone in January this year unfortunately this coincided with me going into full time work involving 2hrs travel per day. Since January I have felt more and more exhausted (even having to drop a days work to a four day week, and drop a days pay!!!) The aches and pains in my joints (particularly my knees and shoulders) have got worse, excruciating pain in my thighs and hips and I presume because of the constant pain I have become very depressed. Also swelling and pain in every joint in my fingers. My doctor has done all my bloods (normal) and then sent me to a rhuematologist who dignosed fybromyalgia. Life was hard and infact at times I thought I would be better off dead :-( Well...to get to my point approx a week ago on a Friday I realised I had run out of my Tibilone, I was a little worried but there was nothing I could do, I just had to wait until Monday to even put a script in at the Docs. By Sunday I realised the pain in my thighs and knees had eased a lot! by Monday my mood was so much better, I actually felt happy for the first time in months! I tried to think what was different? why has there been this change in my symptoms...I was looking at what Id eaten or not eaten then it dawned on me TIBOLONE!!!! I googled and got this sight and thank GOD I did. since I stopped this horror pill that Friday I have got better and better and feel I have a life again. I dont think I have Fybromyalgia I feel the side effects of Tibolone mimic the symptoms of Fybro. I know this HRT has worked for some but there are an awful lot on here that have had similar dreadful side effects so please anyone that is considering taking it just be mindful of how dibilitating the side effects can be. My hot flushes and insomnia were NOTHING compared to what I have been through..I will put up with them standing on my head than take any more HRT that could cause this again.

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  • Lydia1982
    Lydia1982 Guest

    Posted

    Hi,

    I was searching online to see if anyone else has had the same issues from taking Tibolone, and found your post.

    I've been on it for about a month, and I've been noticing a lot of pain and stiffness in my fingers, swelling in both ankles and feet, and muscle aches and pains in my legs. Even my toe joints in my left foot hurt! My belly has been swollen and bloated as well, and I'm finding that I'm rapidly getting extra fat all over.

    I'm 39, and I wasn't looking too bad for being a very inactive person, due to multiple chronic illnesses, but I recently found out that Tibolone is actually a synthetic steroid, and I've taken a course of steroids in the past which made me gain weight quickly, and caused me to feel very ill. Had I known it was a steroid, I'd never have agreed to go on it!

    I've decided to just stop the tablets, see how i am after a few days, then get an appointment with my GP.

    I hope you're doing better now.

    Regards,

    Lydia x

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