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I have suffered with this from I was 18 i'm now 41 and it's getting no better! I've lost count how many times that they have been excised in both my arm pits, it's pretty bad in my groin too. Doctors are talking about removing part of my Labia! which I don't want,I also get them on my neck which is soooooooo embarassing as people stare and have asked me \"have i got chicken pox\" this is a very painful desease, and all the antibiotics in the world are not going to cure it. But I will struggle on as i'm not going to let it beat me. Doctors have told me thats it's linked with fibromyalgia which I also have. I also have arthritis and it's made worse due to this desease, as I don't know if it's that what is making my joints sore or the arthritis.Lucky for me i've a very caring and understanding doctor who is doing the best he can. So you all hang in there things can't get any worse.
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I suffered for years, eventually i was diagnosed in 1988 and was treated with roaccutane (isotretinoin) in huge doses, the side effects were awful while I was on the medication but I have to say that since then flareups have been few & far between. I had a large excison on the sternum and both armpits.... my last mild episode was about 3 years ago. Hang on in there....
I myself have had a particularly bad week with the HS a massive flare up in my pits has meant I am struggling to do anything for myself and as a formerly strong, independent confident woman it really has gotten to me this week. Sometimes it seems every silver lining has a cloud! However we must all struggle on. Chin up Ladies!
My lowest point was when through ignorance my ex in laws used to think it was my diet that was causing it and would stop me from eating 'the wrong things' when eating meals with them! their family would join in and openly discuss the way I looked and dressed without any proper support. I was left reeling and feeling alienated. My ex husaband was embarrassed to be with me. My confidence took a battering and I ended up with depression.
I have basically given up on course after course of antibiotics which lessen the flare ups while you are taking them, but then it seems to make the condition worse as soon as you stop! Though the down side to that being that the longer you leave it, the bigger and more painful they get.
I am 40 now and having a particularly bad session currently, though I have the support of a very good doctor. To top it all I have now got suspected chickenpox!!!
I have resigned myself to the fact the condition will re occur constantly and have learnt to live with it. I take comfort from my 3 children who see past it and my second husband who has kept my self worth and confidence intact.
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