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I’m curious about others dealing with chronic pancreatitis. Any details you’d like to share about what you’ve been through/deal with on a regular basis from CP, I’d certainly appreciate.
My story starts in August 2013 when I had my first acute pancreatitis attack. I’d been having stomach pain throughout the day, but I woke up in the middle of the night to it turning extremely sharp. I made it to the bathroom, but had to call for my husband to call the paramedics because I couldn’t stand. CT scan and blood work showed pancreatitis and I spent the next several days on bowel rest trying to heal. I had a major complication from over-fluid through the IV and spent the next several days in ICU.
After that hospital stay, I just didn’t seem to return normal at home. I was still in constant pain and throwing up randomly. Within two weeks of being home, I had another attack that landed me back in the hospital. This time, they found pseudocysts that eventually needed surgical intervention. During that surgery, in November 2013, I had a small part of my pancreas and colon removed in addition to the cysts. After the surgery, I developed MRSA and had to spend just over a month in a select hospital getting intense antibiotic treatment.
2014 was a good year. I didn’t have any attacks, but would have some occasional nausea/slight discomfort. In January 2015, I had another attack that landed me back in the hospital. During that stay, I developed jaundice due to a narrowing in my bile duct. I had stents placed to open the duct and was home in a couple weeks. In May, I was admitted to the hospital with diabetic ketoacidosis, which is when I was officially diagnosed with diabetes due to lack of insulin production from my pancreas.
I had several flare ups over the next year. The pain and nausea were every day things for me to deal with. The stents were not working to keep the bile duct open so I finally had a biliary bypass surgery in March 2016. They removed my gallbladder during the same surgery.
I’m still sick all the time and make frequent ER visits for pain control/hydration. I try to treat myself at home the best I can, but will go to the hospital when I’m unable to keep fluids down on my own.
Can anyone else relate?
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