Living with genital herpes

Posted , 4 users are following.

So here's my story I've lived with this for over 2 years now it ruined my life as in I lost my home access to my kids and even some friends. I use to get outbreaks all the time but after starting surpresive therapy I found myself living a life without or not having noticeable outbreaks. My life was getting back to normal the only thing that reminded me I had it was the 2 pills I took every day. Four weeks ago life delt me another blow out of the blue and totally unexpected I suffered a pulmonary embolism a clot travelled from my left leg through my heart and into my lungs it's left my heart damaged but no one is sure how badly yet only time will tell I'm breathless walking 20 feet and and on the sick from work the nature of my job probably means I will never work again and I thought herpes was the the worst thing that could ever happen to me I guess I was wrong

0 likes, 8 replies

8 Replies

  • Posted

    This website has many people are newly diagnosed and you are the worst kind of person those people need to be seeing 'it ruined my life' then you must of had a terrible life to begin with

    we want to let people know it isn't all bad

    For new people reading this, listen to my advice

    When I first got it yeah it was terrible but NOW I am super okay, I have a new Job which I dreamed for for 2 years, I have a long term boyfriend now and we are actually trying for a baby (pray for me nothings happening yet) and I don't take supressive therapy because I don't want medication to be my life, Yeah I get outbreaks but now its only one spot every now and then which is just itchy like razor rash 

    I'm okay and you will be okay too

    • Posted

      No I had a good life married nice house fantastic kids after my diagnosis I was forced out of my home away from my kids and the centre of most people's talks so yes the diagnosis did ruin the life I had if I hadn't been diagnosed I would probably still have that life I loved 👌

    • Posted

      Ouch, that's a bit harsh! Herpes and the fallout following diagnosis isn't okay for everyone, so why pretend that it is if it's not, or avoid using the forum as an outlet? It's not only for those with positive experiences, and I have certainly seen 'worse' posts on here!

      Anyway, it sounds like Kev *was* finally back to normal, all things considered, when hit with a second unrelated issue, and it's the double blow that he's understandably upset about, although the second health issue is admittedly 'off topic'. Guess he's just looking for an outlet to vent.

    • Posted

      I'm sorry to hear what happened to you, by the way. If it's any consolation, I know someone who suffered a *double* pulmonary embolism, also totally out of the blue, and managed to recover as far as I know. He has other health issues on top, too, albeit not herpes, plus a messed up marital/family situation (third wife left him the last I heard). You're not alone!

  • Posted

    Firstly I am sorry to hear about what you have been going through and I hope things start to get better for you even if it feels right now it won't.

    Secondly to the person who says don't say herpes ruined your life. Herpes has ruined my life too! I've been diagnosed now for 8 weeks. My five year relationship ended over it, my family and friends look at me with disgust and I have no one to talk to. So yes herpes can ruin your life and leave you feeling low and worthless.

    I hope things get better for you

    • Posted

      I'm now a a believer everything in life has a purpose an event which happened to me at 7.40 pm on 24/12/15 means I have to suffer but worse because of my cowardress the most important people in my life will also have to suffer as my medication will never be allowed to take to work.

  • Posted

    I just wish I could go home and that none of this had ever happened to me.

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