Living with Haemochromatosis
Posted , 5 users are following.
In Febuary 2000 i was finally diagnosised with Haemochromatosis, something that took almost every Dr in the Hospital near on 2 yrs to find.
I am a 55 year old male living on the South Coast (UK). (West Sussex)
With a few of the symptoms/ side effects like Swollen knuckles on both hands that are visible, along with several other joints also giving me some pain now and then. A major issue i find is the tiredness,meaning i have to sleep most afternoons for an hr or so.
My Ferritin level was 4500, which took just over a year and a half to get down to a reasonable level. It has been a long road for me, with depression also being a big issue too.
If anyone else has been down that road to,then i'd love to hear from you.
2 likes, 6 replies
angela28253 michael1960
Posted
terrihigashi michael1960
Posted
angela28253 terrihigashi
Posted
mark_24924 michael1960
Posted
I'm 42 and dxd five years ago. Depression has been a huge issue for me, though markedly reduced since phlebotomy treatments started. It is more of a physical depression like chronic fatigue than emotional, though it can get emotional when the fatigue goes on long enough. I also suffer serious joint pain and that has been getting worse with the years despite the treatment. I am not looking forward to what it will be like as I get older.
cstar172125 michael1960
Posted
michael1960 cstar172125
Posted
It also does seem to be that i may just be the only one here, but i get Aching legs as well,every day. The kind of Ache that makes them feel just like jelly,and not able to hold me up,for fear of just collasping.