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living with L.S.

Posted , 3 users are following.

suzanne_H
suzanne_H

Hi people,just found your site, I have just been diagnosed with L.S. after 21 miserable years, I am 45 and have been suffering since I was 24. I heard about L.S. years ago and went to my doctor and he said couldn,t possibly be that!!! just had my second biopsy in ten years and been diagnosed. I must say it is a relief to at least have a name for it.I have been through the mill over the years, I have had allergy tests, thrush treatments ( all of them lol) been to the std clinic even though I knew it wasn,t an std,(so embarassing)I use dermovate to heal my skin, but it burns the life out of me, zirtec tablets are a great help during the day they kept me sane at one point and piriton sometimes help at night (they are both antihistamines) I keep a tub of vaseline in the bathroom it really helps to put some on before you take a pee lol stops the stinging.

0 likes, 5 replies

5 Replies

  • Guest
    Guest

    Posted

    thanks for posting --we all need support with this horrible condition and its hard to talk to family about it. I havent heard of zinc tabs, will look into that. With me its the dermovate thats causing a horrible rash on my legs, I feel like stopping it altogether because the LS itself wasnt as bad as this rash is.
  • suzanne_H
    suzanne_H

    Posted

    Hi just want to say I use tablets called ZIRTEC not zinc you can buy these at the chemist and they give great relief from the itching
  • Guest
    Guest

    Posted

    Yes, LOL I just realized after I posted it ! I am familiar wih zirtec ty x
  • D
    D

    Posted

    :lol: Hi Lol as you say at least you know what it is now.Can I ask you have you read my letter and others re Paladin Nappy cream. I have been using it on its own now for over a month no dermovate or anything and it

    really has worked.I just can not believe it! I have had LS for 2 years and nothing has really helped and have just come back from hols and been

    swiming in sea and pool and had no prblems.Hope you decide to give it a try and all goes well with you.If you need any more info re how to order the paladin cream please do not hesitate to contact me.

    Kind Regards

    D

  • Guest
    Guest

    Posted

    After suffering for 4 years, and being diagnosed with lots of different symptoms (LS, dermatitis, eczema, thrush, etc), my dermatologist has suggested trying 50% liquid paraffin in 50% white soft paraffin for washing and after 3 weeks I feel better than I have in years. It is available over the counter in the pharmacist for around £4 per tub, so it might be worth a try. Makes the bath dangerously slippy though.

    Have also tried Hydromol Ointment which can be used instead of soap, and is also quite gentle - I find aqeuous cream too harsh.

    hope these are of help.

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