living with LS is hard
Posted , 7 users are following.
[color=darkred:9c66c7c7e1][/color:9c66c7c7e1] :cry: I have been living with LS for 5 years now and cannot seem to get it under control. GP seems a bit blase about it and doesnt seem to put my mind at ease at all. I have another app. with her soon and hope to ask a few more questions. LS seems to affect my anal area the most and at present am very sore and swollen. I am very weepy and wish someone could reassure me.
0 likes, 9 replies
Guest
Posted
K_T
Posted
I was diagnosed in November last year. At the moment I am due to stop using the steroid ointment after an initial 3 month treatment. I am starting to feel more comfortable, although my inner labia are disappearing rapidly. I wash and moisturise this area with aqueaous cream. I sometimes use E45 cream also. The constant moisturising seems to be the key comfort factor for me. Also I have stopped wearing my (tight!) jeans so much and wear skirts more often, along with cotton underwear. When having sexual intercourse I use [b:d3e0cc519a][u:d3e0cc519a]absolutely loads [/u:d3e0cc519a][/b:d3e0cc519a]of lubricant and this has prevented the pain and splitting of the skin.
margy
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AJ
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I go through phases of being really positive about it (when the Dermovate is working) and phases of being weepy (when it isn't). Have suffered for a few years, only diagnosed a few months ago, so perhaps should give it more of a chance.
I find that liberal use of E45 cream or aloe gel helpful. I use Anusol on my anus, which also helps.
GP knows little and gynaecologist at hospital not much more. I may start to investigate other therapies soon. Fed up of not being able to have sex with my beloved, patient, understanding husband!
It's comforting to know that we are not alone and can share our experiences.
Guest
Posted
I go to the hospital every 6 months for a check up but I always feel like a freek when they all gather around to take a look.
When I went for one of the appointments there was a student there ,so I let her take a peek as I thought they need to learn about it.
But as I got up I saw her face ,she looked as if she felt sick and then sat there for the rest of the time looking at me with a look of discust on her face as if she had trod in dog mess.
I've now got a phobia everytime I go to the hospital and hate the students being there.
I use Dermovate cream but only when it's really bad as I'm afraid of the skin thinning and getting more problems.
It seems to be getting worse this last 6 months and it's sealing up fast.I wished they'd spend more money and get more information for us ,so that we are offered more creams ect to get rid of it.
I'd never heard of LS until I got it and it makes you feel so down some days when it's really bad because you just can't see a way out of it.
Tasha_e
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However, I'm coming to terms with it now as I just think, there's nothing I can do about it and so far my sex life is still normal and it's not really affecting my life too much. I think we just need to say to ourselves, it's not the end of the world, it's hard but we can't let this rule our lives. I try to be positive because I think to myself \"there are far worse conditions i could have.\" My best friend is very ill in hospital at the moment and unable to walk or talk and I think that has put things in perspective for me.
I hope you all find ways to cope with this horrible condition too and try not to let it get to you too much.
xxLAURAxx
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Mojo007
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I use Aqueous cream to wash with and after using the loo, and i find Savlon helpful when i am torn or cut as it prevents the onset of thrush and other nasties. Sex is painful but vaseline or other lubes are helpful-and yes, lots of it! i find i can only have sex once, then wait about a week til im healed up -only for it to tear all over again. white cotton underwear and skirts and generally all things airy are good to wear. Love the idea of wearing gloves at night, as i wake up countless times scratching myself til i bleed. I find the symptoms actually get worse around my period-does any one else find this? Also if i have a cold or feel unwell generally. I have seen a gyno and been put forward for 2 operations-one labia seperation and more recently a widening of the vaginal opening. i havent actually plucked up the courage to go ahead with these little ops and have cancelled them. Has anyone else had either of these procedures done? i am not convinced it will help, but maybe cause more issues. Any thoughts would be much appreciated. thanks so much.
AJ
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