living with oxygen

Sorry I can't help you with this Jackie as my knowledge is limited to watching my sister and a couple of friends who were on oxygen 24/7.  I think that like everything else in life you will get used to it love. There are some good comments on here from people who are using it 24/7 and especially about small portable tanks that can be carried.  I do hope you feel better soon. Regards Patsy43

Hi Jackie , I've been using oxygen 24/7 for 4 yrs, I use a concentrator at home and at our caravan and liquid oxygen or small cylinders for outside. The liquid oxy container is much easier to carry but you need to have a garage or shed etc to store the unit unfortunately I'm not allowed to store it at the caravan so I use cylinders. I use 2L , I can't increase my levels as I retain CO2 . the long tube on the concentrator can get on your nerves dragging it about but that's a trivial complaint on the whole I don't have any problems. Good luck x Julia 

I suspect my problems different in that the source was cardiac arrest- low oxygen pumping , but breathing is effecting all movement  .Looked into hyperbaric oxygen ie: divers chambers but GP said not suitable .

There is also lip- lymphoedema involved so unless get antibiotics when have a chest infection I think I could die .Over the years have found acupuncture and a flu jab & thyroxine have kept infections away as get utis too needing antibiotics too.

I had to take to night sleeping in my old laz-boy chair, and have developed issues with my posture as well.  This exacerbates several other concerns, and I would get into that at length at a later time.

Should you be interested in short correspondences, I would gladly welcome sharing my experience/s with you.

I am in Palm Springs, CA, U.S.A.

chrisD

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Have previously mentioned the portable oxygen concentrators. But must tell you that last October I went by air from Brisbane to Amsterdam and then went on one of the long ships down the Rhine for 18 days. All I had was the portable oxygen concentrator. I have less than 20% lungs left.

Off the ship at Budapest I then flew to London Heathrow via Germany.

I had a carer with me. The flight back to Australia was all ok. I am saying all this so that everyone knows it is possible to travel with portable oxygen. All Us airlines and most other major airlines accept the oxygen concentrator I have.

Don't think I can mention the brand on here but if any one wants to know about it my email is [email removed]

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I've been using oxygen for almost two years and I'm still not used to it. I am depressed about it and can't seem to accept it. I just feel terrible a lot of the time. Some days are worse than others, and today is a really bad day.

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