Living with Recurring Glandular Fever Many people who c...

My story is identical to the above. Glandular Fever in the early 60's when the Dr. Initially didn't know what was wrong with me. I changed completely after having it, insisted it was recurring and people didn't believe me. I can not "over do It".

I went to London with grandchildren and ended up with swollen glands very sore throat, dreaaful cough..symptoms won't go . Delighted to read similar stories on the site. I am adapting my lifestyle accordingly as a result of these revelations. My daugter has also had it but not quite so badly but we are so glad to read the account and are now being more careful with our health and the way we handle things. 

My girlfriend had GF many years ago and now she suffers the sysnthoms of weakness, tiredness and swollen amigdals when she stresses or pushes herself too much or gets a cold.

My questions are about the chances of contagion.

Am I exposed to get the disease too? What kind of care should I take and under what circumstances should I worry? Do I need to avoid kissing her when she shows sympthoms like tiredness and swollen amigdals? Do I need to avoid kissing her for long time after those sympthoms have dissapeared?

Is it that I only need to worry if she make a full episode including whitish spots in her amigdals and high fever, etc?

I haven't found enough reliable information about the contagion in patients with recurrent sympthoms - the info I've found only seems to refer to the first episode and how the patients are contagious during convalescence for several months. But what about all the people who live with the latent virus? How likely are they to pass it to a partner or a child though saliva? Is there a vaccin? Thank you.

The first time I had GF was when I was 22, not long after my second child was born.  I am now 65 and have had recurrences of GF on and off since.  I have it right now and I can tell you, it is probably the worst bout I have had and it has lasted at least a month already.  Sometimes I think I'm coming good, then it hits me again - especially if I try really hard to be normal. 

We've just bought a rural property that needs a lot of work and I think I internalize my stress.  I love doing outside jobs with my husband, being amongst the trees and animals on our property;  but sometimes I can't even bring myself to do anything inside or out.

Before I depress you further, I would like to add that Olive Leaf Extract and the Fusion brand of Astrix 8 (both herbal products) are very good for helping me get through the day and help me feel pretty normal for a while.  I use herbal Pain Relief (which is mostly Tumeric, I think), for the times when I am aching too much.  I really don't like taking medications.  They all help.  I have a rash on my chest and face, which is itchy, but I use Sudocrem for that (Zinc Cream with no parabens).  My fair skin has always been very sensitive to chemicals.

Hope this helps someone.

 

Hi there, my friend had Glandular Fever in her early teens and it was a several case. But 4 years have passed and she constantly is sick (headaches, nausea, dizziness, feeling unwell) we believe that the virus is still in her body somehow and would like to know if this is possible or if there is a way to ease it. Any advise would be helpful. Thank you

Hi. I was told about 15 years ago that I'd had GF at some point in my past, I certainly couldn't remember being told I had it but I knew I'd always suffered bad colds and especially awful throat infections. In the past year I've had three serious bouts of viral throat infections - only finding out it was viral after 3 courses of antibiotics in 4 weeks...so it had been pointless taking the antibiotics. But my throat has certainly been feeling better/ less painful in the last 2 weeks and now the doctor says it is too late to be treated for Epstein-Barr with blood test. Does anyone else know this? It's so frustrating realising I could have found out for definite. Any views would be appreciated.

Hi,

I was diagnosed in February 2006, when i was only 8. It started with tonsillitis symptoms, then developed, until i collapsed and basically my airway closed up and got rushed into the paediatric a&e. I spent 2 weeks in isolation with IV antibiotics and some other sort of medication that i cant recall. 

I had flu like symptoms, along with vomiting (due to the meds), extreme exhaustion, difficulty swallowing and just generally feeling bad.

When i was discharged, I was unable to walk long distances, and was given a wheelchair until i rebuilt my muscles. I couldn't return to school for 5 months, and then i only started with an hour a day, until i could build up. Unfortunately I was at a private school at the time, and couldn't keep up with the demands of moving around for each lesson, carrying a heavy bag and competing in contact and the competitive nature, so i moved to another state small primary to continue my last year and half of primary school- this was obviously hard as i had been at that school since nursery aged 2.

Ever since the day I left hospital I have had back pain, and have been visiting a osteopath each month. He was a great help and helped to drain my lymph nodes throughout my body, he also kept my body in alinement. Being 8 and being limited to exercise it took a toll on my growing and positions. After having treatment at great ormand street, I have since been diagnosed with scoliosis, hypermobility syndrome, with cysts and degenerative disk disease in my lumbar region of my back.

Recent blood tests have shown a chemical imbalance and slight damage to my liver- (i am not an alcoholic). Having the odd drink at university also highlights the issue, as I develop pain in my abdomen and can be violently sick even after one.

After suffering chronic fatigue for approximately 2 years, i started visiting councillors, I don't believe it was depression, however 2 years of feeling awful has its toll. 

Once I started secondary school I didn't really have any more symptoms of the fever, however ever since if i get run down (due to a cold, or just over doing it) I have mild glandular fever symptoms.

I am now being 19, at university, training to be a paramedic, and have to complete 12-14 hour night shifts, I have been unwell for approximately 4 weeks out of the 10 weeks of placement so far, however I am thoroughly enjoying it.

I think glandular fever is only fully understood by the people who have had it, I know my case was an extreme version of the illness, however reading above it was comforting to know that others have had a similar experience.

 

Hi

 My name is William and this is my first post; I was diagnosed with glandular fever at the age of 17. On the day, I was volunteering for some event and as everyone was preparing to leave I started shanking and blacked out. My friends rushed me to the ER and as we arrived there was a team of doctors prepared ready to help me. My friend called in prior to our arrival. After they checked me over and I was dying ha everything was fine but my bloods came back with glandular fever, had no idea what is was id never even heard of it. I remember I got very tried all the time and soreness around my neck. Now I’m 28 and have been diagnosed again by blood work?? I’m very confused!!

 Best Regards

William

I had recuring glandular fever from November 2014-March 2015 not just the extreme tiredness and fatigue but constant infections, fevers and severe sore throats. I got rid of it that March and haven't had it for 20 months but this week the sore throat has come back. I know it's glandular fever because the pain and symptoms are so unique and only on the left side- as it always was. Does this mean it will be the same as last time lasting 6 months and being infectious or could it just be that the symptom has recurred without the actual infection?

Hi, I had glandular fever 20 years ago I was very sick at the time and was admitted to hospital for two weeks. My liver was messed up and i didnt eat for 2 weeks as a result I lost 15 kilos. Almost every year i get a cold and it floors me every time with the same symptoms as glandular fever but not as severe. I was dating my wife at the time and I'm positive she is a carrier previous boyfriends she had before me contracted the virus within a month of dating her. I seem to get it worse when I've been really busy at work and not sleeping properly. So the only thing i can see is to try to be well rested. I'm glad there is other people with the same problem.

Thanks Ben