Living With SVT
Posted , 62 users are following.
Does anyone else worry about their SVT or do you just accept it as a harmless nuisance. I can't stop worrying about getting another attack, how do you accept it and live a normal life again?
4 likes, 139 replies
jamie62138 toffeecushion
Edited
Just wanted to chime in and give some info that I've learned dealing with SVT in hopes that it can help someone else in dealing with this awful condition.
A little information about me and my SVT:
Mine tends to be on the worse end of things, where my episodes always usually lasted 6+ hours and I had the most awful symptoms with it. Heart rate always above 200bpm (my er visit heart rate was 256), sometimes had vision issues like tunnelling and going dark, profusely sweating - and I mean so bad that whatever clothes I was wearing would be soaked, along with whatever else I touched during the episode, skin cold - particularly my hands and feet, nausea sometimes, a pain in my throat/jaw area, sometimes slow movement - body feeling heavy, or unable to move because it would make it all feel worse, and just generally feeling uneasy if that makes sense. The maneuvers that we are always told to try, never worked for me, so I always had to just endure the 6+ hours of hell that my body was putting me through.
My ER visit consisted of them pushing adenosine into me and it worked successfully. I saw a cardiologist afterwards that put me on medicine, and outright wanted me to get an ablation, which I refused.
What has been working for me:
I noticed that my episodes always come on when I have not drank enough water, so I make sure that I am properly hydrated every day. Looking back to when I was hospitalized for one of my episodes, they gave me a handful of horse pill sized potassium pills and told me that my potassium was very low. What I've figured with the help of a doctor friend, is that my episodes are a result of low electrolytes. I drink plenty of water throughout the day and supplement that also with a water or sports drink that has electrolytes in it. This entirely keeps my episodes at bay, and I haven't taken metoprolol for months after figuring this out, and not one episode has happened.
I hope at least one person reads this, tries this out and it helps them, because living with this condition is absolute torture in so many ways and it seems like a lot of doctors just don't care anymore.
I wish you well ☮️
jasminn216 toffeecushion
Posted
i got officially diagnosed with PSVT Jan 4th of this year but been dealing with symptoms since maybe a year in a half. it was diagnosed as panic attacks. i have 2-3 -attacks per week and they are so scary. i know doctors say it wont kill you but i feel like i'm dying every time. i'm so scared to live a normal life anymore. i dont hangout with friends anymore, i'm scared to travel, i have pvcs like crazy now my anxiety is so bad. hoping for an ablation in the near future because i cant live like that. thankfully i can revert out of them but sometimes it takes 30-1 hr and its so exhausting and disabling. i hate the side effects of beta blockers as well. praying for everyone dealing with this , it sucks so bad. it's crazy so many have dealt with this for 10+ years i cant even imagine i'm only 2 years in