living with sytemic lupus 30 years now living with shingles

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late last year got sick went to the doctor and she said shingle i was like what is that my first outbreak was very bad and now on number four this one was worst than the first my whole right from my butt to my knee and feeling bad fever and all went to ER doctor said he had never seen and out break like this one i do belive it is stress related just like my lupus

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  • Posted

    Hope you are feeling better, mine was about six weeks ago and has left me with the constant nagging nerve pain,which I am determined to overcome. Feel quite bright and active for one day,next day I just want to sleep. Eating well so I guess it will just take time.best wishes for a speedy recovery to you. Jackie
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  • Posted

    hey for my pain my doctor gave me lyrica because its your nerve try this.
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  • Posted

    Hi Yvonne,

    I have Systematic Lupus Erythematosus, but have been getting Ramsay Hunt Syndrome-Herpes Zoster Oticus in my right ear every there to five weeks for the last nineteen years. The first time I had shingles I saw two ENT physicias who thought I was faking the pain as they could not see a rash, yet. The pain was so excruciating I felt like I was giving birth to a 20 pound baby through my ear canal while being tased by an electric cattle prod. It took three weeks for the rash to appear on the external ear. Now I know at the first hint of the pain to take my Famvir. I am also on Topamax, an anti-seizure med, which I am certain has prevented post herpetic neuropathy and reduced the intensity of acute pain. I also use Auralgon ear drops which has Benzocaine, a topical anesthetic. Lastly, I take oxycodone to relieve the severe headache for the five days I have the pain. I rest a lot during each episode to hopefully decrease the length of the shingles outbreak and intensity of pain.

    I am sorry you also suffer with this.

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