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I have had silent reflux for years but recently started with what I think are GERD flares although Gastro have not got as far as giving them a name. I failed my endoscopy because I woke and had a panic attack, barium showed reflux nothing else, Ct been done but results not back yet. No other tests performed.
I keep having random bouts of a bad night bringing up acid for hours, then the next day when I get up my hunger has gone, the acid continues and I find I can no longer eat, I am full even though I have not eaten.
I get a lump in my throat and pressure mid chest as well as the acid.
The acid and hunger takes months to settle then just randomly it comes back.
Take 80mg esomeprazole then in a flare add 300mg zantac and pepto bismol as required. Even this is not enough to calm the acid.
My GP has no idea what else to do, went wed to her office in tears and she looked almost as helpless as me.
I saw a dietitian who could not help who sent me to a gastro nurse who said she had no idea either.
My gasto just says up esomeprazole each time i get to them, I was taking 20mg when I started seeing them.
I have lost over 3 stone due to not being able to eat, hairs coming out, on fortijuices but still loosing weight.
Is this normal for GERD? I see others mention flares but say they have 2 a week etc mine just does not let up.
I am scared and confused whats going on feel so lost and getting nowhere with gastro each appt has a 9 month wait between. I am going to be skin & bones before they help me?
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