Long term consequences of Glandular Fever
Posted , 14 users are following.
I'm a twenty three year old woman. I have been sick with Glandular Fever for almost four months. All symptoms still present with no improvement, sore throat, swollen glands, fatigue and muscle pain. I got a diagnosis quickly as my best friend had Glandular Fever so I knew to ask for the blood test. While she has returned to full health (guess who infected me and made me sick due to her carelessness) I am not getting better. Unlike some people whose stories I've read, I have not been bed bound and have continued working without informing my employers of my illness. However, living with this disease has made my life a daily struggle. Anytime I'm not working I am resting in bed. I hardly ever socialize anymore and spend most my time alone. Even before I became ill, I never drank or smoked, and I ear healthy. However, I am worried about developing Chronic Fatigue or MS as I am not recovering. I am afraid in the long term I will lose my job to this disease if it becomes a chronic illness. I have been to GPs and they can't tell me how long more I'll be sick or if I'll get better. I fear that I missed my only window of recovery because I continued to work and didn't quit my job when I was originally diagnosed. I'm now facing the prospect of being sick for the rest of my life. And the thought of that makes me wish I was dead.
1 like, 142 replies
sickanon2 sickanon
Posted
Sick Anon here. New account because the site has changed, and I seem to be locked out of my old account.
I lost my job. I've lost everything. I am now forced to move back home. I am sick and unemployed. There's no hope left for me, I was made redundant due to my poor health. And even if I was offered a new job in the morning, I would be too ill to take it. This disease has taken everything from me. As long as I am trapped in this sick body, I can kiss my dreams of a career in graphic design good bye. Eight months later and no sign of recovery. I can't afford to be sick for months or possibly years with a gaping hole in my CV. I'm feel utterly hopeless.
40with.gf. sickanon2
Posted
Oh sickanon.... Are you in the u.k?!
my work yesterday banded the idea of me getting the sack?! Not sure when or how long they are thinking, but I think there are different laws between the USA and uk?!
I thought the same thing, I can't work if I wanted to, I'm about 9 months in now . Slow improvement but not work fit!
i know it's not what you want to hear, but at least you can move home. You can pick up with work when you're better.... You will get better. For sure.
It is just dreadful, and very demoralising when the low mood and exhausted comes over you. I so understand.
please don't think this is it forever, I've not met one single person who hasn't recovered and I've met a few who have had it and been ill for this long.
caroline x
sickanon2 40with.gf.
Posted
I am in Ireland. They aren't admitting outright, but I know it to be the case. Physically can't perform the way I could before my illness. Being made redundant is difficult enough, without being trapped in a sick body, and therefore prevented from seeking another job. It will mean being separated from my boyfriend and everyone I know. Holding onto my job was my last connection to the person I used to be. After working so hard to achieve my dream job, having it ripped away from me, with no hope of returning to the workforce, is soul destroying. Asking me to believe in a recovery that hasn't appeared in 8 months feels like asking me to believe in Santa...sorry, I know you mean well..
40with.gf. sickanon2
Posted
You can sue for unfair Dismissal, I presume you supplied them with doctors sick notes?!
I know, I know, I completely understand how you feel. It really is utter rubbish. This just isn't our year.
when you look back, is there anything you can do now that you couldn't before?!? Any symptoms that have eased, length of bad days shorter???
x
sickanon2 40with.gf.
Posted
I always provided doctor's certs. But I would find it impossible to prove my illness to be the cause of dismissal. Plus I am cash strapped as it stands, with all the medical bills I have had to pay, not to mention my impending unemployment. All the symptoms I had at the start of my illness are present, sore throat, swollen glands, fatigue, aches & pains, headaches and pins and needles feeling in my limbs. The severity of my symptoms varies, some days are worse than others, but every time I think I might see an improvement, I end up back at square one. Confusing, according to blood tests, I no longer have Glandular Fever. I am suffering from Post Viral Fatigue according to him. Personally, I have felt no change from Glandular Fever to Post Viral Fatigue. While I can't say my condition has worsened since my inital diagnosis, all my original symptoms are still present.
sickanon2
Posted
Another reason that an unfair dismissal case wouldn't have a leg to stand on. Technically, they didn't break the contract, my contract was up and they've chosen not to renew it.
Mono_too sickanon2
Posted
Hi Sickanon,
I am sorry this is happening to you, it is such a discouraging virus, The low mood that goes along with it makes it so hard to see improvement. I know I feel better but the bad days can really bring you down.
?I am going to try to take some online classes for work, to earn designations I have not previously had time for, I don't know if you can do this in your line of work but it is something that can be done on your own time.
?Recovery is slow but the body will eventually get a handle on the virus.
40with.gf. sickanon2
Posted
Hi,
you know, I still have Those symptoms present, sore throat, burning thighs at night, aches and tiredness. But I'm sure it's getting less. Although when the low mood happens I find it hard to be positive, and totally feel back to square one.. All I want to be is normal. I'm so sorry about your job. This is debilitating and there is no way anyone can work like this.
I hope Improvement happens soon, for all of us.
x
brent_83487 sickanon2
Posted
I understand your pain. I worked through most of my illness. I didn't want anyone to know I was sick. I am paying for it now. I hope you get better and are able to follow your dreams. I still have brain fog that effects my employment position.
sickanon2 brent_83487
Posted
I regret allowing my pride get the better of me. If had quit the job, I might have recovered. Now I've possibly missed my only window of recovery, and facing a future of being sick and unemployed. As long as I am ill, there is no hope of me working and supporting myself. If it weren't for my family, I would be homeless right now.
sickanon2 brent_83487
Posted
I'm so sorry that you have gone through the same thing. I was also desperate to keep my illness secret and continue working. I can't fathom why doctor's don't insist on patients giving up work/education upon diagnosis. I don't believe Glandular Fever is treated seriously enough by health professionals.
sickanon2 40with.gf.
Posted
Sorry to hear that you're also still suffering the full range of symptoms. I can only hope that recovery is still possible. Hope you feel better soon!
sickanon2 Mono_too
Posted
I am hoping to try and do some training courses or something in the meantime. Being trapped at home in a sick body with nothing to do fills me with dread. Plus a large, unfilled gap in my CV is a huge worry for me. The worst part of the redundant isn't even so much me losing my job, but knowing I am too sick to hold down another job. Even if I was offered my dream job again in the morning, I would have to turn it down. That knowledge is utterly depressing me.
40with.gf. sickanon2
Posted
Hi sickanon,
of course you will get better, you defintely will, we all will!!! it just takes so much rest and time. Which can be so demoralising and frustrating. I know!
It is great that you do have family around you to help you though.
i do agree that doctors should insist you give up work. There is no possible way I could have worked? So it's amazing you worked as much as you did.
i don't think people realise how bad of a virus this is.
😕
craig07920 40with.gf.
Posted
Hi Sickanon,
I really do sympathise, it is a horrible feeling being stuck at home feeling unwell and trapped in your own thoughts, when all you want to do is be feeling better and be out being active again and keeping your mind occupied. It's so hard to hold it together, hang in there Caroline is right you definitely will get better - don't lose hope because there is hope today and I believe for you that you will get better.
And don't beat yourself up about this, you didn't do anything wrong, noone knows how the virus is going to play out and this isn't your fault - it isn't anyone's fault it's a horrible virus but remember it does and it will get better - I truly believe that for you Sickanon and you Caroline.
Craig
brent_83487 sickanon2
Posted
40with.gf. brent_83487
Posted
Brent, that's awesome you are seeing improvements! I'm so pleased as you have been through such a rough time... Which has probably felt like forever!
its funny, I do not know ANY of you people personally but I think about all of you going through this right now more than some of the people in my life!!
i can see why Craig you stay on the forum.... How am I ever going to leave?? Lol.xx
Mono_too 40with.gf.
Posted
Mono_too brent_83487
Posted
Hi Brent,
?That's wonderful news. What improvements have you noticed? How long have you been sick? i