Long-Term Liver Confusion

Posted , 9 users are following.

Hello, everyone. I apologize in advance for the long post. I have been dealing with liver problems for the past 2 years, and time has only served to give me more questions and fewer answers. I have seen numerous doctors and specialists, and each has given me contradictory information, or no information at all. I hope that by turning to other sufferers, I might shed a little light on my issues.

For years I was addicted to painkillers and alcohol. I am a 28-year-old male, and from years 18 to 26 I put my body through a hell of a beating. I am under no illusions that my problems are anything but self-created. I had a BMI of 32, ate junk food and energy drinks, got zero exercise, drank beer every day, smoked cigarettes and popped pills.

In 2014 I began having symptoms consistent with liver failure. I became extremely fatigued, had trouble getting up in the morning, trouble staying awake, and yet I couldn't sleep properly. An odd combination. The right side of my abdomen felt . . . strange. I began having pain, itchiness, and nausea while eating. Also some mental fogginess/lightheadedness and irritability.

I went to the emergency room because I didn't have health insurance, and was diagnosed with elevated liver enzymes after a blood test and gallstones after an ultrasound. The doctor seemed to think my elevated LFTs were a result of excessive acetaminophen consumption, and that my values would return to normal upon abstinence.

Fast-forward to now. I have a BMI of 23.7. I haven't touched alcohol or pills in 2 years. I eat a diet so healthy that I am routinely mocked  by friends and family (lighthearted mocking). I take daily vitamin and milk thistle supplements, and eat all the foods supposed to help the liver: garlic, lemon, avocado, grapefruit juice, spinach, broccoli, walnuts, etc. I exercise daily and sleep . . . as well as I'm able. Physically, I feel remarkably better.

But my last blood test showed higher elevations of liver enzymes than that day at the hospital. To my touch, my liver feels enlarged; significantly so. ANY prescription medication seems to cause my liver to enlarge further, and I am overly sensitive (again, so it seems) to large quantities of protein.

I have been told everything from: "Your liver is fine," to "One more sip of alcohol and you'll need a liver transplant, which is a death sentence because your insurance doesn't cover elective procedures." Most healthcare professionals I see are simply confused or dismissive. No one has told me, even in basic terms, what diet or exercise regime to follow. I have been told more times than I can count to quit alcohol--which I have done long since. I guess they don't believe me, but the fact that my results make them think I'm still drinking when I know I'm not terrifies me. 

The single bad habit I haven't yet kicked is smoking (that and too much coffee). The only explanation I'm left with--pure self-diagnosis here--is that my liver is irreversibly damaged. Of the signs and symptoms indicating cirrhosis, the only one I seem to possess is Terry's nails (my fingernails are white with the band at the edges). But one symptom is enough, I guess.

I went to the dermatologist recently (I have health insurance now, although it's crappy), for a prescription for finasteride, since I am losing my hair. THAT elevated my liver enzymes, and seemed to bring many of my symptoms back (hard to tell sometimes if it's anxiety or not). I know it's absurd, but the fact that I can't fight my hair loss depresses me more than the thought I might be dying. The dermatologist insists I should be fine taking the medication, that my LFTs aren't THAT high. But I'm paranoid.

Here is a summary of my bloodwork by date:

ALT(SGPT):

8/12/14 - 186 IU/L, Ref. 0-44

10/13/14 - 102

10/1/15 - 92

11/12/15 - 147, Ref. 9-46

AST(SGOT):

8/12/14 - 104 IU/L, Ref. 0-40

10/13/14 - 49

10/1/15 - 69

11/12/15 - 62, Ref. 10-40

Bilirubin, Total:

8/12/14 - 2.0 mg/dL, Ref. 0.0-1.2

10/13/14 - 1.6

10/1/15 - 1.8

11/12/15 - 1.4, Ref. 0.2-1.2

Alkaline Phosphatase:

8/12/14 - 104 IU/L, Ref. 39-117

10/13/14 - 113

10/1/15 - 119

11/12/15 - 145, Ref. 40-115

I have twice been given the hepatitis panel; negative both times. I was vitamin D deficient, but have since reached normal ranges due to supplements. The only other abnormality to note is:

TSH:

10/1/15 - <0.006, ref. 0.450-4.500

a shockingly low number, and the first time it was outside normal ranges; on my most recent test, it was normal again. t4, free(direct) has always been normal. i almost wonder if this was a mistake or fluke. and i have no idea how or if the thyroid is affected by the liver.

again, sorry for the long post, but i wanted to be thorough. any comments or advice would be much appreciated. my doctors are evasive and contradictory, and my low-class health insurance means i get shuffled between new doctors repeatedly, with large gaps between visits. i just don't know who else to talk to. ref.="" 0.450-4.500="" a="" shockingly="" low="" number,="" and="" the="" first="" time="" it="" was="" outside="" normal="" ranges;="" on="" my="" most="" recent="" test,="" it="" was="" normal="" again.="" t4,="" free(direct)="" has="" always="" been="" normal.="" i="" almost="" wonder="" if="" this="" was="" a="" mistake="" or="" fluke.="" and="" i="" have="" no="" idea="" how="" or="" if="" the="" thyroid="" is="" affected="" by="" the="" liver.="" again,="" sorry="" for="" the="" long="" post,="" but="" i="" wanted="" to="" be="" thorough.="" any="" comments="" or="" advice="" would="" be="" much="" appreciated.="" my="" doctors="" are="" evasive="" and="" contradictory,="" and="" my="" low-class="" health="" insurance="" means="" i="" get="" shuffled="" between="" new="" doctors="" repeatedly,="" with="" large="" gaps="" between="" visits.="" i="" just="" don't="" know="" who="" else="" to="" talk="">

a shockingly low number, and the first time it was outside normal ranges; on my most recent test, it was normal again. t4, free(direct) has always been normal. i almost wonder if this was a mistake or fluke. and i have no idea how or if the thyroid is affected by the liver.

again, sorry for the long post, but i wanted to be thorough. any comments or advice would be much appreciated. my doctors are evasive and contradictory, and my low-class health insurance means i get shuffled between new doctors repeatedly, with large gaps between visits. i just don't know who else to talk to.>

0 likes, 17 replies

17 Replies

Prev
  • Posted

    Basically sir...the liver is your motor to your vehicle besides the brain. All kinds of tests will need to be done. I'm going through tests that indicate I have PCB (liverproblem) and it's scary as hell. I have an MRI on monday and a liver biopsy to come. It's horrible not knowing. You mentioned thyroid. That too has everything to do with regulating hormones. Body function. Losing hair is the lesser extent. Heck guys just keep their heads shaved if that's the case. Please do go and try find a good doctor and take all your past test results with you and you might get a "all is ok" kinda thing but ask for another test then compare to what you currently have. I'm in canada and things here are quite good. although not everything is good. Good luck and take care. smile

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.