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I'd like to hear about other people's journeys with long term chronic illnesses that defy diagnosis. Let's compare notes, learn from each other, and give one another support. My mystery illness has been ongoing for nearly 30 years now. Only last year did they begin to diagnose some of it.. hashimotos hypothyroidism ,(no antibodies, dx by biopsy), anemia, oral allergy syndrome (can't eat most plant-based food), idiopathic angioedema, possible celiac, moderate esophageal dysmotility, allergy based problems, vocal cord dysfunction, fibromyalgia, idiopathic hypersomnia, mthfr double mutation, low igg, chronic Vit d deficiency and a partridge in a pear tree. still trying to figure out weaknes and pain in upper limbs and lower back, occasional collapsing on exercise, memory problems, brain fog, occasional word related issues, occasional crippling fatigue, tired all the time, falling, toe and rib dislocations, muscle spasms, chronic tendonitis. What is your story? How are you feeling about it all? How is life?
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