Long term, unexplained chest pain
Posted , 235 users are following.
Hi all
After struggling with docs for years over this I thought I would turn to the wider world some input. I am a 27 year old, healthy (enough) male who has been getting intermitment, iregular and infrequent chest pains on and off for around 10 years.
During an 'attack' the pain can be quite severe and sharp - I guess a bit like being stabbed. The pain is localised to the left side of my sternum and feels fairly deep (i.e. it cannot be palpated).
Attacks can last anywhere from a few seconds to a day or so, and tend to come in 'clusters' that can be present for up to a week. There can be months between each cluster of attacks (if you get my drift!).
Pain can sometimes be exacerbated when leaning forward, coughing, lying on my side or raising an arm (seems to always vary - and can sometimes not have any stimulators).
During a 'cluster' period and between attacks I can often feel a mild, underlying ache in my chest. This is easy enough to ignore however.
I have had ECGs and chest xrays that have all been fine, and am not affected at all during exercise - I can happily go out and run 10k with ease.
Doctors have in the past rulled out gastro refulx as there was no tenderness on palpation of my stomach area, although I have sometimes thought that attack can follow a big meal and be accompnied by burping (although this may be my mind tricking me).
Muscolskeletal problems have been mentioned, but why would attacks come in clusters and seemingly out of the blue?
I am at a compltete loss and doctors have been no help. My wife is scared that I will just drop dead from a heart attack - and I am struggling to find new ways of reassuring her.
Any help/thoughts/insight/advice would be seriously welcome!
Thanks
20 likes, 457 replies
sinead_34836 ji86
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ji86 sinead_34836
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I don't have any tenderness really when I press down on the painful area though. As a musculoskeltal infalmatory condition I would have thought this would ilicit a pain response?
Alos, is it normal for costo to just come and go with no real trigger or suspressant?
Thanks!
dee50031 ji86
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merrylynn2 ji86
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adrienne32106 ji86
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cupcake44184 adrienne32106
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DemiX cupcake44184
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cupcake44184 DemiX
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susan62870 adrienne32106
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Your description is exactly what my husband is describing. We are going crazy trying to figure out what is going on. Have you found any additional information?
Thanks for sharing your experience. I do hope this messag finds you stronger.
Susan
kjohn168 cupcake44184
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sam302 kjohn168
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I am a 32 year old female, back in september 2015 I had my second bout of severe chest pain right under my left breast, radiating to my back and when I tried to breath in It hurt and it was like there was no room for the expansion of my lungs. i thought i was having a heart attack, the pain was just that intense. I waited 2 days prior to going to emerge. On the second day the pain was so bad that I couldnt keep anything down. On my way to the hospital which is only a five minute drivefrom my house I had to pull over and vomit. At the hospital they ran tests from x--ray, to ultra sound, blood work and they found nothing. they gave me this chalky white stuff cause they believed it was heart burn. When nothing else worked, finally they gave me dilaudid, It only worked for 20 mins. They admitted me to the hospital and just keptpumping me full of dilaudid, the next morning they sent me for a scope and when that turnedup nothing, they arranged for an MRI to be done, so they transportedme 2 hrs to another hospital for MRi, and finally this revealed that I had a gull stone lodged in the common bile duct of my liver, however is this possible as a few years earlier I had my gull bladder removed, and three weeks after that surgery I had to be rushed to Toronto for an emergency surgery to extract the Gullstone that lodged in my common bile duct of my liver, that one almost killed me. During the first extraction They took precautionary measures so that this would not happen again. They cut a slit in the bile duct and pinned it open with ecrp clamps. But evidently that didnt stop another one from becoming lodged, As I mentioned above this past september it happened again.
Oh and I am one of those lucky 15% of people who will continue to make gullstones even though i do not have a gullbladder.
mark69325 adrienne32106
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Your comment described how it is for me exactly! the pain is giving me anxiety attacks now for sure I rang an ambulance before Christmas because I thought I was having a heart attack they did a blood test and said my heart was fine and said It was probably stress but it still comes and goes
I seem to like sleeping with on my back with arms back(elbows behind head) or I wake up on my front with my one arm left or right under the pillow which is straining the muscles or something I think this maybe my cause
What do you think? Did you find out any new info I would love to know if you don't mind i was glad to know I'm not alone lol
Mark from North West England age 30 male
thomas_90582 adrienne32106
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mattymx27 adrienne32106
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Hi bit late to join the convo but reading through these reply's and found your symptons 100% match mine I also so find myself belching a lot which strangely helps, recently developed anxiety and constant worry, did you ever manage to find any info on what it could be? Any help appreciated 23yr old male
brandi33182 adrienne32106
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I'm so glad you wrote about your experience! I am going through the same exact thing as you, mine began Febuary 1st with chest pain. The pain is always there but ranges from a dull ache to a stabbing pain on the left side of my chest. I have now developed anxiety and have frequent panic attacks. My dr wants to start me on medication for the anxiety, what has you dr done to combat your anxiety!
zaw adrienne32106
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I am really happy to know that I am not alone. I am 30 year old female suffering from left chest pain for a year. I have visited three doctors already. They make me do some tests. But we found no problem. The last doctor thinks that I am having anxiety and stress. This morning when I was having breakfast, I had left chest pain and it went to left shoulders. I am scared now. I don't know if I can seek some help. I feel really really hopeless. (Once I have visited psychologist too.)
Jholdman1979 adrienne32106
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Hi!
I have also been dealing with undiagnosed chest pain for a number of years, 8 1/2 to be exact. :-( My doc has me on three different medicines for blood pressure and heart rate, and Zoloft for anxiety, but everyday the nightmare continues. It truly has taken over my life and no one can seem to tell me what it is. I hate it that you're going through something similar! If you have any words of encouragement, I could definitely use it. Sometimes it helps to talk to someone who understands since most people don't. Write back if you want to.
Take care,
Joel
alex37559 mattymx27
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Hi Matt - my name is Alex. I am experiencing everything I have read. I get sharp pains. And it travels down my left hand side and I suffer symptoms that you would think is those of a heart attack. I have suffered different kind of pains for 4 years now. I have had every test you can imagine and I've been told I'm fine. Doctors can't figure it out so I've been told I have to try and manage my pain. I'm a healthy 27 year old who keeps fit and active as I'm. PE teacher. I have recently suffered panic attacks and anxiety. It's just nice to know I'm not the only one suffering. Unfortunately no one knows what the problem is.
ash73913 mattymx27
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And until now still pain is coming right off the bat. Hoping someday we will find very well.
john84288 DemiX
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shoka91526 Jholdman1979
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dave17866 shoka91526
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I am a 60 year old male American; in very good shape. I have upper left chest pains as well. I can't induce the pain but it seems to worsen when I am seated, resting with shallow breathing. Ocassionally I will bend and the pain begins. It lasts for a only 5-15 seconds. I have had a cardiac ultrasound, stress test and angiogram! It doesn't appear to be cardiological. I have just recently had a chest xray and lung CT Scan; nothing remarkable was found. I beleive I may have costochondritis. Just so you will know, H pylori doesn't mean you have an ulcer. 30% of all Japanese have H Pylori and are asymtomatic for GI discomfort. I hope you get some relief.
dianne80640 shoka91526
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My case is crazy. It began two years ago and to make it worse i have an abnormal ekg so if i do not have a copy of an old one its full on panic mode. Which doesnt make me feel good at all. I have seen three cardiologists, been to er four times , saw two internist, gastrologist, neourologist pain management dr and pt. so no one can say i did not get checked out many many tests thankfully i have great health insurancebut still paid thousands toward deductible. Pain was in my stomach this week n i took a prevacid got nauseous went to urgent care my left arm and hand felt sore n alittle tingly. Severe upper neck n back pain like a burning the random left side of my chest pain n under leftarm. The closest i found relief was exercises provided by pain management dr he said if it gets worse i may need injections which i am fast approaching, when i saw er dr last night she gave ne tramodol n said nothing major is going on. They think stress n costio pain. I worked from home n thank thr lord i can do this otherwise i could not work. Truly ruining my life. I have had mammo n all annuals been on prevacid n nexium all helped alittle so i am tryign to watch food carefully, i have cut coffee to one cup a day. No pop low meat and my bmi is in range . By looking at me u would not see any issues with pain. Any input is appreciated
joann20187 dianne80640
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Hi, have you ever been checked for a congenital or hereditary heart condition? I have chest pains for many years, and had all the tests you can think of, but was never diagnosed. I saw many doctors and cardiologists because I kept looking for helo with my pain. I knew deep down that it was my heart, but never thought I was born with a heart condition. Anyway, each doctor told me all my tests were normal. I was patronized and the critucisms ran the gamut from being called a hypochondriac, a worrier, and to "stop focusing on my heart so much." Lol. Well, I was finally given a Cardiac Cath, and was diagnosed with a Myocardial Bridge. I never heard of this, but I was born with it. There is much info online. I googled it and learned so much. There are other heart conditions that u can be born with that can also cause chest pain, arrhythmia, etc., and sadly go undiagnosed. I hope this helps anyone who may be frustrated and misdiagnosed, or who haven't gotten any diagnosis!
tanya41913 dave17866
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I am also feeling the same symptoms you are experiencing. My chest pains are pressure radiating through back, with back throbbing and heavy palpitations, along with short of breath. I can't sleep on my left side because the pain of the palpitations worsen. seen by 2 cardiologist, one cardiologist gave up after having negative results on my stress echo. So I seeked a 2nd opinion, next step is a holter monitor.
I wanted to ask you Dave about the angiogram, was that test a breeze or scary?
Thank you all for sharing.
Hoping we can all find relief and cure to our pain. Blessings to you all!
tatiana31303 tanya41913
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Your symptoms sounds similar to mine.
I cannot remember what started first - pain, high BP or pounding heart. On January 3rd this year I woke up from pounding heart and chest pain. My BP was also high. With those symptoms I went to ER. Heart attack was ruled out. Since that time I am having chest pain on and off - sometimes all day or all night. About every other night pounding heart wakes me up. I went to see cardiologist. He said: It's not heart. ?? Tried to treat my condition as it is costochondritis (I took pack of steroids) - that didn't help. I also tried to treat my pain as it is GERD. No results. My oncologist sent me for chest CT. That test revieled a module on my thyroid. I am going for biopsy soon. But that nodule (even if it is cancer) shouldn't cause my problems. I am going to see my PCP tomorrow and thinking to ask her refer me to see endocrinologist to check my adrenal glands. Pheochromocytoma would be my next best guess.
su44800 adrienne32106
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Going through the exact same symptoms as you. Did you find out what it was?
elisha1986 adrienne32106
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I'm going through all that you mentioned about the types of pain and the same areas exactly right now been going on for 2 weeks so far and now I have a cough it hurts to breath and cough too.
rahul67955 adrienne32106
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Pls see my reply to ji86. It will help u for sure .. I'm healed now
Guest adrienne32106
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I am 29 years old, Male. I am having exactly the same conditions form like a decade. X-ray, EFG, ECHO, Stress test all negative. The doctor said "Costochondritis" and after months of taking medicine, nothing changed. Complete helpless here.
TGrove Guest
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This whole Costochondritis thing seems like it's just a catch all term for "chest pain and I'm not sure why". How annoying