Long time Menieres patient with new help!
Posted , 5 users are following.
I was diagnosed in 1982 with Menieres Disease, after a whole battery of tests at 5 military hospitals. The first two years were terrible! Sometimes my 4-yr-old son had to take care of me when I was stuck in bed, throwing up, diarrhea, could not turn my head. Really weird disease. Then it calmed down and though I still had the attacks, I was no longer so sick. The military doctors put me on 4 medicines to take as soon as an attack hit: Sudafed, Mecklizine, Valium, and most important - Robinul. Now thats a strange medicine for Menieres, because its a stomach medicine, BUT GET THIS: it has a side-effect of stopping the reaction between your digestive system and your balance system. Practically immediately!! (The only problem is a dry mouth, so I just sip most of the day.) The doctors in my area to where I moved assure me I am the only patient who uses Robinul for Menieres. I wonder why - It's great stuff. BUT NOW I HAVE FOUND SOMETHING NEW - it's a natural medicine in patches! I put one behind my ear that is affected, and one on my belly button, and they last 3 days! EVEN STOPS THE TINNITUS!!! This is what they are called: MQ Motion Sickness Patch. I hope this helps some other people out there. I'm delighted with them. I noticed some of you asked what brings on an attack, and I've found mostly it is STRESS. My last 8 months have been overwhelming stressful, so I am very grateful to have found these patches. Relax as much as you can, put your faith in God that He can and will handle any problem, and take your meds. I joined this group just to pass on this info. I hope you are helped by it.
MrsBettyG
1 like, 8 replies
Candy1130 MrsBettyG
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MrsBettyG Candy1130
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Candy, read what I wrote to Christina. I forgot to add that since I've been using the patches I have hardly had to use Robinul and the other meds. But I keep them with me constantly.
christina91807 MrsBettyG
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MrsBettyG christina91807
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When I first began having attacks, I took it daily, but as the symptoms calmed, I let my prescription lapse. DON'T EVER DO THIS!!! It's hard to convince a doctor who isn't used to prescribing it to let you try it. Thirty years after my series of bad attacks I had a vicious one, caused by the stress of caring for my Dad after his horrible surgery. My primary doctor would not prescribe it. Took 3 weeks waiting for an appt with an EENT specialist before I could get some. I was sick the entire time. He, the EENT, had never heard of it either but I told him about the side effect, and he prescribed it. He still does not prescribe it for any of his other Menieres patients even though I assure him how great it is! Military doctors are more apt to prescribe it than civilian docs. Now I take 1/2 tablet immediately when an attack hits. Waiting 30 seconds makes me sick for an hour. Waiting 60 seconds means I'll be sick all day. My son got me a bracelet that holds 2 pills. That's handy.
christina91807 MrsBettyG
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MrsBettyG christina91807
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I don't know what stemetil is. I have stuck with what the military doctors started me on in 1983, and just added the patches. I don't use anything all the time, just during times of extreme stress like the illness/death of a loved one. If I'm calm, I don't need any meds for Menieres, but I learned not to let the prescriptions lapse!!! Re the patches, I have found that they work GREAT, but to keep my Robinul with me just in case. I have only had to use the Robinul twice since I started the patches.
david2salsero MrsBettyG
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MrsBettyG david2salsero
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