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long time suffer of LS

Posted , 7 users are following.

christine94142
christine94142

hi everyone, i have just found your forum i was born southampton. but now live in australia i have suffered for over years with various trial of different  treatment ments and are for awhile then i have relapse. i am at the stage of giving up my husband is a saint he is patient and loving even though are sex life is non exitant. i am on antideressants to help me  deal with things. theres not a minute of the day i am not thinking about my LS and how nice it would be to make love to my husband again without pain. i cant talk to anyone about it . my mother passed away.i cry alot at night when my husband sleeps. i am only 55 yrs old.and life sucks

0 likes, 20 replies

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  • Guppy007
    Guppy007 christine94142

    Posted

    Christine...its good that you have found this site, it will be helpful for you.

    I think finding a good doctor is the key, often when we dont feel we are being looked after properly it can make you feel overwhelmed, also Australia is such a vast place, have you thought about setting up a online support group? or even not online, I would imagine that there are a lot of woman that feel as isolated and miserable, it might be something to think about...its good your hubby is understanding, although there is no harm in crying when he is awake, you need to have that support.

    I am glad you found us!

    • christine94142
      christine94142 Guppy007

      Posted

      thanks me too i feel better already just with the replys i have had

      thanks

    • Guppy007
      Guppy007 christine94142

      Posted

      I'm glad to hear that...I feel the same way too...funny thing is that when I was first diagnosed I didn't have a clue about what L.S really was, and I was meeting a girlfriend for lunch afterwards, who happens to be a doctor!! and when I told her about my diagnosis she hardly batted an eye lid.   The thing is I was  still reeling from being diagnosed from another auto immune disorder and I think I kinda shoved Lichen Schlerosus "on the back burner" I felt like I had enough on my plate to deal with at the time, and then of course when I realized something was wrong with my Vjay I was horrified, I can remember thinking "how the heck did that happen!!!  I felt horribly shocked and kinda let down, my gyno most certainly did not explain the gravity of what I was dealing with, and my doctor friend was the same, its hardly any wonder we are all clinging to each other for support!!!  what a state of affairs lol!!

      Anyway glad your feeling better.

      Katie

       

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