Long wait for treatment :( please help!
Posted , 5 users are following.
Hello,
For almost a year now I’ve been going through horrible pain and anxiety and I’ve been through an absolute nightmare of trying to get a diagnosis.
First a bit of a back story. This time last year I was just a happy 25 year old newly married male who had never experienced any anxiety or chronic pain. I keep myself pretty healthy, used to play a lot of hockey (can’t anymore) and I eat pretty well.
In early November I began getting horrible pains in my rib cage and around my neck. Shorty after that I was getting very severe abdominal pain and migraines... and painful muscle spasms from head to toe.
Luckily I live in Canada because my Doctor put me through the wire of testing. He tested pretty much everything over the last 11 months.
6 months ago I fell into a very bad depression and had to go on sick leave. During this time I would get horrible bouts of pain that would cause severe panic attacks which only brought more tension.
Finally 2 weeks ago my doctor told me after getting a clear MRI that he suspects I have Fibromyalgia. He referred me to a rheumatologist but I am now on a wait list that could be longer then 8 months... he doesn’t want to put me on pain control because I am very sensitive to medications... we tired the whole SSRI thing but that only made my anxiety and stomach pain worse... we also tired Naproxen but it caused a horrible stomach ulcer.. so basically he’s told me to get the right medication from the experts and to stick to ice and heat... awesome
Does anyone els out there do anything to manage pain? I’ve also recently developed sleep apnea and restless legs...
Please, anyone with tips would be so helpful. I honestly don’t think I can go another year like this 
I need to get back to work and my old life.
I should note, I’ve been getting counseling for the anxiety and it’s been amazing, way more beneficial for me, haven’t had a panic attack in a month. Just learning to live with the pain but it’s really hard....
0 likes, 6 replies
Mrs_Hobbles timlit2r
Posted
So sorry you're going through all this pain and anxiety, especially with no pain relief! I'm guessing as you are in Canada, that you were tested for Lyme Disease? Fibro really is different for everybody and it can also affect everything, as in digestion, and can have up to 64 symptoms! I'm not sure if I'm allowed to say it here but I use a natural product that you can inhale or eat, if you known what I mean?! I make the oil myself by heating the product gently in oil and then let it steep for a few hours, then take a tablespoon of the oil in yogurt to make it more palatable! I personally find it the best for pain and digestion issues, but also anxiety. I have to say I don't get any 'other' effects from it which is perfect for me cos I couldn't deal with that! I'm sure others will come along with other suggestions and hope that you can get some good from them. Keep us posted with how you're getting on!
Tannersnan Mrs_Hobbles
Posted
Mrs Hobbles, I know what you mean about the oils but is all the THC out of it? where I live it is legal in calif. I tried it and no relief. it didn't have the pysocactive ingredients in it??? do you have fybromialgia or lymes?? wish I could find something for pain besides pain med....😩
Mrs_Hobbles Tannersnan
Posted
No, THC still in it, heat the plant in oil, not hemp! I have Fibro plus other pain & fatigue conditions and it definitely works! Hope you can get some that dies work for you!
Tannersnan Mrs_Hobbles
Posted
so no THC in it?? so take Canabis heat in oil?? what kind of oil, how long??
if they don't allow please contact me personally at. tannersnan@charter.net
Tannersnan timlit2r
Posted
Hello Tim, I have been diagnosed with either fibromyalgia or lymes arthritis for pain I had been taking 1/2 tromadol when need now fir the past 4 months or so I have had a severe flare up and have had to increase to 1 or 2 a day. I hate any meds especially narcotics so I tried CBD OIL then THCA oil no help to me all medicine has bad sude effects that I HATE.. my doctor gave me gamabintin but after reading on here the horrible side effects I am afraid to try it. have hurting all over and achy body. I now have fluid on both hips and am waiting to see my rheumatoid specialist in December. this is a hard road but DON'T GIVE UP keep looking for relief. prayers for you. some people get relief from ca a is but I don't want the high that is why I tried the oils.
christine26761 timlit2r
Posted
A rheumatologist is the one that diagnoses FIBROMYALGIA it took most of us on here years of differing symptoms and tests before we were finally referred to a Rheumatologist and got diagnosed, try not to stress most of us on here did and it really flares the Fibro up.we all get some of the same symtoms as you we are all so different and et different ones, hope you get diagnosed quickly. Ii take amithriptaline I'm in Australia so its called Endep other countries have different names for it, I have very low dose one per night...never had it increased either..it blocks the pain at the nerve ends and stops it traveling through your body, such a great sleep, its an old antidepression med so that part is our little bonus...it makes you feel a bit drowsy when you first start taking them, you just have to persevere..i also have sleep apnea , I use a Bipap machine at bedtime, my sleep is great, its not a bother at all, the restless legs I get also,, with having Fibro in most cases, you end up having Chronic Fatigue Syndrome. I used to nearly drop off when talking to someone, but the BiPap machine at night keeps the airways open and you get the right amount of oxygen you need, so I might feel a tad tired sometimes I dont nod off now..lol, yay. Hooe thise helps some..be blessed and have a lovely day.