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Looking for an answer !

Posted , 3 users are following.

liauq
liauq

Sorry, this is a long moan!

Two years ago I had three "episodes" and my gp did lots of tests and referred me to consultants that ruled out diabetes and thyroid problems and didn't come up with anything thru' blood tests/heart checks.

So I decided that I'd have to get on with it .

It's left me very mussy headed and prone to headaches.

My memory is appalling and my vocabulary has been affected, at first I'd start sentences and forget how to end them!

I used to love reading but now I don't seem to concentrate on reading books and lose interest.

Poor sleep and constant tiredness; it feels as though every part of my body is exhausted.

Basically, I'm ticking all the boxes for pernicious anemia except the breathing problems (only when things are very bad). and thick tongue.

Anyway, the main problem is that sometimes when I go out for a walk my brain,eyes and feet don't want to co-operate, I get exhausted and feel that I'm going to fall.I'm getting frightened of going out on my own.

I'm also concerned that I've recently started to get pain in my left shin and numbness/tingling in my left foot, which can make walking even harder as I feel as though I'm limping a bit.

So the doctors have ruled some things out and I'm pretty sure that I've been diagnosed with menopausal female syndrome and the doctor would love to give me a prescription for anti-depressants but I think it's auto-immune and I'm fed up and want to go out again on my own without being frightened.

I have mild raynauds, white patches on my arms like vitiligo,I've had hyperthyroidism in the past and I'm allergic to the sun and cosmetics.I have a very poor digestive system, sometimes my stomach just refuses to work, I get bloating,gas and constipation; it's pretty useless. For over a decade I get headaches and weakness and have to just stop everything and rest for a couple of days!

I know that my neice has auto-immune problems including fibromyalgia,ibs and vitamin deficiency and we've a good family history of type 2 diabetesand thyroid problems. 

Does this ring a bell with anyone and does anyone have any advice? ta.

 

1 like, 3 replies

3 Replies

  • sandy67
    sandy67 liauq

    Posted

    I have just posted something similar! Waiting for responses and hoping for some answers. Good luck to you. Are you in UK and whereabouts?
  • liauq
    liauq

    Posted

    hi,Sandy,

    thanks for your reply.

    do you find that you have good days and bad days?

    Sometimes I feel ok, usually when I see the doctor and I find it very hard to explain how I feel!

    Please carry on with your post as to how you get on.

    I went for a blood test for b12 yesterday but I've decided to take tablets as they seem to help with mussiness caused by other things like CFS.

    Good luck.

    • clivealive
      clivealive liauq

      Posted

      People with autoimmune disorders (especially thyroid disorders such as Hashimoto’s thyroiditis and Grave’s disease) Type 1 diabetes, vitiligo, lupus, Addison’s disease, ulcerative colitis, infertility, acquired agammaglobulinemia, or a family history of these disorders are at risk of developing a Vitamin B12 deficiency and some of your symptom point that way.

      Hopefully you didn't start taking the tablets before you had the tests because that will "skew" the results.  If the B12 level comes back "high" you will have to admit to your doctor that you have been taking the tablets.

      Do you know if your Folate level is also being tested?

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